I am newly diasgnosed (young-ish female) with moderate OSP (index of 27) and use a Philips Respironics System One CPAP. My doctor wants me to try increasing the pressure from 5cm H2O up to 6 for two weeks, then up to 7 for two weeks and finally to 8 for two weeks. Hopefully one of the pressures will provide me with effective sleep (still waiting for that one), but I probably can't go too high because central apneas showed up on my sleep study at 9 and 10 cm H2O.
So the question is why can't I find a way to quickly get the pressure changed? I'm fortunate to live in a major metro area with plenty of DME suppliers, doctors and so on, but it takes repeated calls to chase up prescriptions, pin down an appointment that fits around looking after a toddler and doing the school run for an older child. I am not going to set the pressure to 18 and blow myself up... does anyone know of a way I can gain more control of my own life - just by being able to adjust the pressure without being nannied by the DME 'respiratory therapist'? These added hurdles are literally increasing my wait for a good night's sleep by weeks. Am I just impatient? I'd willingly pay for a CPAP machine if I can control it myself, as per the doc's Rx. Is this a possibility?
Sorry to rant, but I am a motivated and compliant patient: working through the emotional issues of recognizing the years of lost sleep and dealing with the reality of needing the CPAP and mask, (probably for the remainder of my life) are challenges enough without getting the run around from the doctors' office and the DME supplier.
Any ideas would be very welcome.
Here's the sort of info you can get there, i.e. the secret handshake. :-)
Elizabeth said:Thanks for the encouragement, Mary. My machine is data capable. I'll try cpaptalk.com; I've not been there yet so thanks for the guidance.