Hi Doc, Is the tank any lower than when you filled it after using it all night? Are you using distilled water?Still snooring...what pressure does your sleep study have you titrated to?Can you check your data to see what your leakage level is?what your AHI and AI levels are? Knowing your data can give clues as to what is malfunctioning : mask may be leaking too much,humidifier may not be enabled in the clinical side of the software ,machine may not be making enough pressure youre dme or sleep doc can check calibration.is your co2 expiratory / pressure ok? It is a process to get dialled in but it is well worth it.Good Sleep ,Chris
Yes, the tank is lower after sleeping, and I am using distilled water, but the problem seems to be getting worse rather than better!!
Hi Gary -
I just read your post - was wondering how this is going for you now? You may get more help if you could post your specific PR model name/number. I currently use a PR REMstar Auto A-Flex with heated humidifier. It has an "efficacy data" card, not just a "compliance" data card (big difference). My DME has the software to read the card for my doc and I like to get my own copy too. If you have a machine that gives efficacy data, you should be able to read some of it daily, on the led screen, and you can write that down in between card readings from your supplier. This would include AHI, mask leak, average pressure (if variable), as well as hours used.
One thing to think about is whether you could be having some acid reflux while you sleep - you may not be aware of it. This can cause a raw throat in the morning, though I'm not sure if you experience this with your dry mouth. They recommend we eat nothing, 3-4 hours before going to bed, to help prevent this problem.
Dr. Steven Park has some good info on this on his website, and there are other discussions on Sleep Guide about this as well.
My understanding is that the apnea process can actually cause a great suction effect which draws the stomach acid up through the throat and even into the sinuses and lungs, causing damage when we are unconscious, and not able to recognize what is going on. Getting your equipment well adjusted to your needs would be important, and also try stopping the food intake early enough. It is worth a try - that raw throat feeling can feel bad and gradually cause other problems.
I was also curious if you had an overnight oximetry test. (How do you know your oxygen is low?) It just takes a small device clipped to a finger to test this while you sleep. Your doc may be able to prescribe this for you for a short term test (equipment rented from a DME), or you may want to get your own if oxygen levels are an ongoing issue. Do you have OSA (obstructive sleep apnea) or Complex Sleep Apnea (a combo of obstructive & central sleep apnea)? This could make a difference too.
It is hard to deal with all of this when you don't feel good, but keep at it until something works for you. Good Luck!
Thank you to everyone who replied!!! I have been back to my Doctor, who has suggested increasing the pressure. I am making the purchase this afternoon, so I will have them check the pressure AND the mask, to be sure that there is no leakage, and that I am wearing it correctly. Surely I am not supposed to wake up in the morning with deep red "gouges" on my face where the mask has been pressing on my face??!! I will report back to everyone as to what the recommendations were.