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ZolliStar posted a discussion
Sunday
liz4cps commented on liz4cps's group Prince William Co, VA support group
"I talked to Kimberlie at the Novant Sleep lab last week (at Prince William Hospital) and she said they would not be holding any meetings this year but are planning to start holding meetings again next year.  I'll let you know when we have…"
Jul 14
richard graham posted a status
"I just have mask called the Wisp. Hope it works. Anybody have experience with it. I have an ultra mirage nasal mask and get leaks at brid"
Jul 9
Andy posted a discussion

Resmed S8 AutoSet II - No Longer Collecting Data??

Hi All,First off, my apologies for not checking in for a long time.I've been using my Resmed S8 AutoSet II for almost 3 years! I feel great, have lost almost 30 lbs, am no longer sleepy during the day, sleep through the night, and have my short-term memory back.Yay!I've told my doctors that I'm the "poster child" for Sleep Apnea and CPAPs! It's been, and continues to be, such an amazing experience that I want everyone to know!Everything has been going well in CPAP-land, but in the last few…See More
Jul 7
hifay replied to richard graham's discussion mouth breathing
"What type of chin straps?"
Jul 6
Ginny Edmundson replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"No real improvement in sleep study.  Just not having to use cervical neck color.  What a bummer. Surgeon wants another sleep study in about a month or so (home one) Not sure if will do or not. "
Jun 22
Mary Z replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"Ginny, how are you doing after the tongue procedure?"
Jun 22
Mary Z posted a discussion

AHI finally under five.

I have been on CPAP since March 2008 and had a good AHI when I started therapy (under 5).Then my AHI started getting worse- for a while it stayed in the 20's, then we got it to the high teens.  Nothing we did would help.  My doctor said it was due to the meds I take.  For a couple of years I just tolerated the high AHI.  I did another sleep study and changed to an ASV machine.  For two years I still had a AHI around 11-13.  Then all of a sudden - a month ago I noticed my AHI was running five or…See More
Jun 22
ZolliStar replied to richard graham's discussion mouth breathing
"FWIW, I've been alternating between my mouth device and my APAP. I haven't used humidity at all when I use the APAP -- and don't miss it, either. "
Jun 14
richard graham replied to richard graham's discussion mouth breathing
"I still use humidity but less of it. It seems to be working OK.."
Jun 14
ZolliStar replied to richard graham's discussion mouth breathing
"I rarely use the humidifier. I think it's less necessary during the summer when there is humidity.   I also switch between my mouth device and the APAP.  I like each for different reasons. Not sure with which I sleep better, though.…"
May 21
Mary Z replied to richard graham's discussion sick again
"I've been doing well.  I think you were going to try the cpap without humidity- did that help at all?  I haven't had a cold for a couple of years."
May 14
Ginny Edmundson replied to richard graham's discussion sick again
"CPAP seems to cause stuffiness in many of us.  ANother reason I hate it so much!Do you rinse your nose with saline once a day…maybe before you go to bed for the night? "
May 5
richard graham replied to richard graham's discussion sick again
"I do wake up stuffed up most days"
May 5
richard graham replied to richard graham's discussion sick again
"I do have non allergic rhinitis. Now I'm thinking that's probably it because I only feel that way for a day or 2. Thank you"
May 4
Ginny Edmundson replied to richard graham's discussion sick again
"I have been lucky.  Not one cold past three years. Could some of your problem be allergies?"
May 4
richard graham posted a discussion

sick again

It seems like I am sick with colds more often when I'm on the CPAP. Anybody experience that.
Apr 30
Ginny Edmundson replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"As of now I no longer have to use a chin strap.  I am anxious about the sleep study.  Wondering if I will be able to sleep WITHOUT the CPAP….even thought I hate it it is a part of every night now and is what I am used to.  "
Apr 20
Clueless in Redwood Shores replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"I had it on the same outpatient basis.  Much pain, no long term gain.  I did not have the annual repetition - that might or might not have made the difference. "
Apr 20
Mary Z replied to richard graham's discussion mouth breathing
"glad to hear it, Richard.  Keep us posted."
Apr 13
My daughter was eating pop rocks on Easter and I casually mentioned to my husband that that's the sound my throat makes when I breath in. I never thought to mention it before. Has anyone else experienced this? I looked it up and it's called Rales, crackles or crepitations. Doesn't sound good.

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How is your overall health? chest pains? are you a smoker? How long has this been going on? Have you recently had bronchitis?
Hi Rock,

I'm in good health, high blood pressure, overweight but working on it. Very slight chest pains, sometimes. Don't smoke (yuck!). I think I've had the crackling for some time now, 3mos? More? I can't really remember. I didn't think it was that important. Don't think I've had bronchitis though I did get very sick with the flu on Valentines day and have been coughing ever since with some yuck coming up. The crackling came before the flu. I went to the doctor for the cough and he said I was fine.. I forgot to mention the crackling at that time. I only notice it when I'm sitting quietly reading at night. My husband said not to worry about it (he used to be a respiratory therapist) and if I went to the doctor again he would just tell me to do deep breathing and use a...can't remember what it is called, it has a little ball in it to encourage you to breathe and to exercise. My husband did say though that he thought it was strange that I had it given that my machine has a pressure of 18/14 and I use my humidifier. I guess that's one of the therapies for rales. What do you think? I'd hate to go to the doctor for nothing. Takes an hour to get there. I also told the doctor that I sometimes have trouble swallowing. Usually on the first or second swallow. Any kind of food or drink it kind of just get's stuck and I have to wait for it to go down. Doc said not to worry about it.
Well I would definately listen to the ex-RT and your Dr. Just keep an eye on it. If it is something that continues to bother you I would go to the Dr. No one knows your body better than you do. I think that as humans we forget the fact that our own bodies will tell us when there is a problem with it.
Thanks Rock,

Guess I'll wait a while and if it doesn't clear I'll go to the doc again.

Rock Hinkle said:
Well I would definately listen to the ex-RT and your Dr. Just keep an eye on it. If it is something that continues to bother you I would go to the Dr. No one knows your body better than you do. I think that as humans we forget the fact that our own bodies will tell us when there is a problem with it.
Doc says it's excess mucus, post nasal drip, caused by allergies but, I don't know. I don't really have too much trouble with allergies and can usually breath through my nose fine at night. I occasionally use a neti pot. I found, while researching some GERD information for a friend, information about another kind of acid reflux called LPR or silent reflux. I have so many of the symptoms. Chronic cough, trouble swallowing, asthma like symptoms, wheezing, post nasal drip.

Just thought people on the forum might like to know about LPR. I don't remember reading about it during the discussions on GERD.
My husband is an ENT. I had the pop-rocks sound in my throat when I go to bed, only when lying down. Had that for quite a while before mentioning that for about a week I had a sensation of really dry, sticky pflegm in my throat and a need to constantly clear my throat and consciously swallow very hard to get rid of it for only a moment. I told him I thought I was having an allergy/hay fever attack because of constantly clearing my throat. My husband instantly said my problem is acid reflux. He started me on the Costco version of Prilosec, about an hour before bed each night. It worked instantly. Comes in a purple box, drug name starts with an "O" - can't remember the whole name and the Costco website is currently down. I take one pill per day. This is a really easy diagnosis - take the pills, if it stops, it's reflux. If it doesn't stop, tell your doctors what you tried and let them figure it out. Personally, I think my husband is a genius.
Sounds right to me. Even though ur nose isn't stuffed up u can def still have a post nasal drip. Neti pot and/or sinus rinse is great. Hypertonic saline spray is great no limit on amount of use. Did the doctor give u allergy meds or nasal spray to treat the post nasal drip? And it's amazing how this can cause reflux when there's too much of a build up. I'm dealing with the same problem was having reflux and found out this was why. If left untreated i have seen it in some cases eventually lead to asthma. Crazy stuff. I work at a pulmonary rehab and sleep lab and it's amazing the things u learn that would never think of otherwise.

bonesigh said:
Doc says it's excess mucus, post nasal drip, caused by allergies but, I don't know. I don't really have too much trouble with allergies and can usually breath through my nose fine at night. I occasionally use a neti pot. I found, while researching some GERD information for a friend, information about another kind of acid reflux called LPR or silent reflux. I have so many of the symptoms. Chronic cough, trouble swallowing, asthma like symptoms, wheezing, post nasal drip.

Just thought people on the forum might like to know about LPR. I don't remember reading about it during the discussions on GERD.
You know it's funny, just after my last post about this in April I started taking Tums before I went to bed and, ta da, cough went away. Thought I'd cured myself. Well here I am again. About 2 weeks after the start of school my 6yr old brought a cold home, I got it too. Wasn't too bad as far as colds go, pretty mild. But, I've been coughing again ever since and have the crackling too. I still take Tums before bed.

My daughter was having problems last year too and we've had her to a lung specialist several times. She coughed for months! No crackling though. We were going to start her on asthma medicine but decided to see how she would be when we went on vacation to California at the beginning of summer. Well guess what, we went on vacation and her coughing went away! Sigh..now she's coughing again too. We just talked to the GP doctor this week because she got the flu. When I told him that she has been coughing again for some weeks now he said, after looking at the lung doc's notes, she is diagnosed with asthma. Mother's intuition...I just don't think it's asthma. Why are we both coughing? Maybe it's mold in the house or something. He said no, you probably have asthma too.

Sigh.........
It wouldnt be Crepitations, unless you had a pnuemothorax (highly doubtful, haha) and were leaking air into your skin....
Its probably nasal drainage or just thick secretions that may be stuck in your upper airway.
First let me ask what testing has been done. Have you had a chest X-ray? Do you have any swelling in your ankles? Do you take any breathing meds? Have you noticed any neck vessel distention? Meaning, are your neck veins more visible? Have you gained any wieght you just can't take off since the flu? Have you had your heart checked?

You mentioned a bad flu right after you started with the crackles. I don't want to throw up a huge concern but.... what you have mentioned leads me to believe that there is a possiblity of pulmonary edema secondary to CHF. If you haven't had any of the aboved mentioned tests then you should. Sleep apnea is one of the leading causes of Conjestive heart failure. Do yourself a huge favor and take the hour drive.

Neal Buckner, LRCP
Nope no chest Xray. Yes, swelling in ankles. No breathing meds. No to neck vessel distention. No to weight gain. No to having the heart checked. I did talk to the doc about the crackles and he said not to worry. I guess I should insist on a full work up of my heart? I don't know what pulmonary edema or CHF is but I'm sure going to look it up! Thanks.
Tums contain calcium. Calcium stimulates acid production. Take a once-a-day antacid.

bonesigh said:
You know it's funny, just after my last post about this in April I started taking Tums before I went to bed and, ta da, cough went away. Thought I'd cured myself. Well here I am again. About 2 weeks after the start of school my 6yr old brought a cold home, I got it too. Wasn't too bad as far as colds go, pretty mild. But, I've been coughing again ever since and have the crackling too. I still take Tums before bed.

My daughter was having problems last year too and we've had her to a lung specialist several times. She coughed for months! No crackling though. We were going to start her on asthma medicine but decided to see how she would be when we went on vacation to California at the beginning of summer. Well guess what, we went on vacation and her coughing went away! Sigh..now she's coughing again too. We just talked to the GP doctor this week because she got the flu. When I told him that she has been coughing again for some weeks now he said, after looking at the lung doc's notes, she is diagnosed with asthma. Mother's intuition...I just don't think it's asthma. Why are we both coughing? Maybe it's mold in the house or something. He said no, you probably have asthma too.

Sigh.........

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