CPAP whistle ? - SleepGuide2024-03-19T11:26:18Zhttps://www.sleepguide.com/forum/topics/cpap-whistle?commentId=2549090%3AComment%3A20499&feed=yes&xn_auth=noWell, It was just getting the…tag:www.sleepguide.com,2009-11-24:2549090:Comment:514872009-11-24T02:25:37.213ZBeeAsleephttps://www.sleepguide.com/profile/BeeSturgis
Well, It was just getting the nasal pillows seated securely in my nose. I have been using a Headrest mask most recently. It works much better for my needs.<br />
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<cite>simanc said:</cite><blockquote cite="http://www.sleepguide.com/forum/topics/cpap-whistle?page=2&commentId=2549090%3AComment%3A51480&x=1#2549090Comment51480"><div>So BeAsleep, I realize that you started this thread back in April and I've read all the responsed you've received. What was the resolution for you? I have the same…</div>
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Well, It was just getting the nasal pillows seated securely in my nose. I have been using a Headrest mask most recently. It works much better for my needs.<br />
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<cite>simanc said:</cite><blockquote cite="http://www.sleepguide.com/forum/topics/cpap-whistle?page=2&commentId=2549090%3AComment%3A51480&x=1#2549090Comment51480"><div>So BeAsleep, I realize that you started this thread back in April and I've read all the responsed you've received. What was the resolution for you? I have the same mask and I am experiencing the same sound as you.</div>
</blockquote> So BeAsleep, I realize that y…tag:www.sleepguide.com,2009-11-23:2549090:Comment:514802009-11-23T23:44:28.542Zsimanchttps://www.sleepguide.com/profile/SimoneManchion
So BeAsleep, I realize that you started this thread back in April and I've read all the responsed you've received. What was the resolution for you? I have the same mask and I am experiencing the same sound as you.
So BeAsleep, I realize that you started this thread back in April and I've read all the responsed you've received. What was the resolution for you? I have the same mask and I am experiencing the same sound as you. I think that you are on to so…tag:www.sleepguide.com,2009-10-29:2549090:Comment:481852009-10-29T01:32:01.865ZJanhttps://www.sleepguide.com/profile/Jan927
I think that you are on to something with the notion of an advocate...now to think of a way to do that on a national level! I've read about so many issues with DME's, doctors etc on here. Of course, the complaints are self selecting in that most people having an easy time of it generally don't post. BUT, what really makes me sad hearing all of these stories (and living some of it) is that it comes at a point when people are just so exhausted and depleted. By the time I dragged myself to a…
I think that you are on to something with the notion of an advocate...now to think of a way to do that on a national level! I've read about so many issues with DME's, doctors etc on here. Of course, the complaints are self selecting in that most people having an easy time of it generally don't post. BUT, what really makes me sad hearing all of these stories (and living some of it) is that it comes at a point when people are just so exhausted and depleted. By the time I dragged myself to a doctor to find out what was wrong with me I was just so tired and so uncharacteristically overwhelmed.<br />
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In addition to lots of other things, physicians, DME's and others dealing with people with this condition need to be educated to understand the physical, emotional and mental toll this condition takes.<br />
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<cite>BeeAsleep said:</cite><blockquote cite="http://www.sleepguide.com/forum/topics/cpap-whistle?page=1&commentId=2549090%3AComment%3A48121&x=1#2549090Comment20620"><div>Judy, I wish you could come to Colorado and be my xPAP advocate. (No, really :>D) When I read your post I feel so lucky to had found a place with real answers, but I feel soooo overwhelmed. I am sooo not technical, I can barely work the TV remote control.<br/> <br/>
Do I call my ResMed provider and tell them what I want or do I call my doctor and tell him what I want and have him write out a prescription for the provider? In my experience, doctors don't like being told what do do. (Understandably). I don't quite know how to approach getting the right machine. Do I take a list in to the doc and say, "This is what I want." ?<br/>
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All I know is I feel like I am drowning when I use this machine. At night I eventually make myself calm down and force myself to breathe against the machine...but it is NOT a rest inducing experience. I want to make this work, I am committed to pushing through the problems. My level is set at an 11 and it does ramp up to that point.<br/>
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Thanks so much.<br/>
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bee<br/>
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<cite>Judy said:</cite><blockquote cite="http://www.sleepguide.com/forum/topics/cpap-whistle#2549090Comment20499"><div>Forgive me, BeeASleep, but when I first saw the subject of this thread I had to giggle. A little story about why. I had been on xPAP for quite a while and was doing well altho we didn't have my Leaks under control as yet. One night I was STARTLED out of sleep by a loud, piercing whistle!!! I had no idea what it was and lay in bed waiting for another or some other sound worth getting out of bed and checking for. But nothing so I just snuggled back down and was dozing off when there was another whistle, not as loud or piercing but still as strong as when you are whistling for your dog. So I lay there aware again waiting for .... whatever. When all was quiet and nothing else occurred I snuggled back down again and dozed off, except that there were two more soft whistles. IT WAS ME! It was air escaping from the corner of my mouth!!! Now, I'd experienced the "lip flutters" a few times before - and since - but that was the ONLY night I whistled!!! And thus, why I snickered and giggled when I saw the subject of this thread.<br/> <br/> 1] Make sure you have secured your humidifier lid tightly. It should snap when you close it securely.<br/>
2] Check your hose for leaks<br/>
3] Roll or turn the barrel of your Swift LT a bit or swizzle the pillows a bit in your nostrils<br/>
4] You should NOT have to force air out on exhalation. You either need an xPAP w/EPR or your pressure lowered.<br/>
5] If you have mixed apnea you are a candidate for a special type of bi-level, an ASV<br/>
6] Most insurances will not pay for a bi-level until you have "failed" CPAP therapy.<br/>
7] Try real hard to get a fully data capable APAP instead of that Escape. An APAP would serve as a good backup device for a bi-level ASV.<br/>
8] A properly set APAP w/EPR (Resmed S8 AutoSet II) should do very nicely to alleviate that struggle to exhale and if you can drag things out w/an APAP for the term of the purchase of your APAP before giving up and having a bi-level titration for the mixed apnea you might end up w/the APAP as paid for and yours AND a bi-level ASV.<br/>
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Altho I didn't plan it that way that was what I encountered. I have COPD. I was started on CPAP. It was a struggle but it helped. I bought an APAP out of pocket. I did bug my sleep lab and sleep doctor during the first year on CPAP and then just got discouraged and spent the next 6 months adjusting pressure settings myself. I did better than the sleep lab had. But - I still wasn't doing as good as I should nor as I wanted. So - I decided to give the sleep profession one more try. I ended up w/a bi-level titration and an insurance paid bi-level (plus my insurance paid CPAP and self-purchased APAP). I wanted a back up bi-level so I sold my CPAP and searched carefully for quite awhile at cpapauction.com until I found a lightly used bi-level auto and purchased it outta pocket. All in all insurance purchased a CPAP and a VPAP Auto (bi-level) for me and I self-purchased 2 APAPs and one bi-level auto.</div>
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</blockquote> i agree with rock!!!!! find a…tag:www.sleepguide.com,2009-10-28:2549090:Comment:481212009-10-28T13:44:50.261Zwallace j smith jrhttps://www.sleepguide.com/profile/wallacejsmithjr
i agree with rock!!!!! find a new doc he doesnt care about you or he wouldt yell at you!!!<br />
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<cite>Rock Hinkle said:</cite><blockquote cite="http://www.sleepguide.com/forum/topics/cpap-whistle#2549090Comment48109"><div>Renee get a new doctor, DME, and complain to your insurance company about the way that you were treated. No service representitive should ever yell at a customer/ client.</div>
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i agree with rock!!!!! find a new doc he doesnt care about you or he wouldt yell at you!!!<br />
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<cite>Rock Hinkle said:</cite><blockquote cite="http://www.sleepguide.com/forum/topics/cpap-whistle#2549090Comment48109"><div>Renee get a new doctor, DME, and complain to your insurance company about the way that you were treated. No service representitive should ever yell at a customer/ client.</div>
</blockquote> Renee get a new doctor, DME,…tag:www.sleepguide.com,2009-10-28:2549090:Comment:481092009-10-28T09:53:02.113ZRockRpsgthttps://www.sleepguide.com/profile/RockHinkle
Renee get a new doctor, DME, and complain to your insurance company about the way that you were treated. No service representitive should ever yell at a customer/ client.
Renee get a new doctor, DME, and complain to your insurance company about the way that you were treated. No service representitive should ever yell at a customer/ client. Hi-- I am using the same mask…tag:www.sleepguide.com,2009-10-28:2549090:Comment:480892009-10-28T01:44:25.820ZJanhttps://www.sleepguide.com/profile/Jan927
Hi-- I am using the same mask. Someone suggested the following when putting the mask on, and I know that it gives me a better fit/seal when I do. I put the gear on, turn the machine on, put the nasal pillows in place and then, with the air blowing just lift the pillows a teeny bit out of your nose and allow the pillows to inflate as you allow then to slip back into your nostrils. I feel like I did a terrible job of describing that...if it isn't clear, maybe someone else can step in.<br />
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Also, in…
Hi-- I am using the same mask. Someone suggested the following when putting the mask on, and I know that it gives me a better fit/seal when I do. I put the gear on, turn the machine on, put the nasal pillows in place and then, with the air blowing just lift the pillows a teeny bit out of your nose and allow the pillows to inflate as you allow then to slip back into your nostrils. I feel like I did a terrible job of describing that...if it isn't clear, maybe someone else can step in.<br />
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Also, in response to the difficulty of sleeping with the air pressure...in addition to some of the other very good suggestions, you might want to trying the CPAP/mask just lying in bed reading or watching tv without the pressure of having to fall asleep. I did that a few times before attempting to sleep with it. It is pretty alien and it takes time to get used to it. Am still in the phase, also. Dear BeeAsleep,
Good Luck as…tag:www.sleepguide.com,2009-10-27:2549090:Comment:480612009-10-27T22:27:00.192ZReneehttps://www.sleepguide.com/profile/Renee450
Dear BeeAsleep,<br />
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Good Luck as your getting used to CPAP and you have found a good place here at SG. I have been getting a great deal of info, support and courage here myself.<br />
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Renee<br />
_________________________________<br />
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And ~ Hello Judy,<br />
<br />
Thanks again for the great info! I just hung up the phone after the doctor from the sleep center where I had my center done finished, literally "yelling" at me and telling me that I did not know what I was talking about. The DME had told me that I could have only…
Dear BeeAsleep,<br />
<br />
Good Luck as your getting used to CPAP and you have found a good place here at SG. I have been getting a great deal of info, support and courage here myself.<br />
<br />
Renee<br />
_________________________________<br />
<br />
And ~ Hello Judy,<br />
<br />
Thanks again for the great info! I just hung up the phone after the doctor from the sleep center where I had my center done finished, literally "yelling" at me and telling me that I did not know what I was talking about. The DME had told me that I could have only the C-Series and when I told them I knew my insurance would cover whichever xPAP I choose, they complained to my doctor that I was insisting on receiving the S8 AutoSet II and she agreed with them to give me only the C-Series Tango. When I still refused to accept the C-Series, my doctor's office said the doctor would return my call whenever she had a chance as she is busy with studies, patients and other important matters. When I reminded them that I am a patient, they said that yes that is so but that still the doctor is busy and will get back to me whenever she gets a chance.<br />
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I had been polite through all the communications. When I told the DME that my insurance would pay for any device, they had simply said OK on the phone and changed the order - or I thought. When I hung up with them everything seemed fine and dandy with no upsetments. It was only afterward that I found out that there were backchannel communications between the DME and my doctor and that I was naive to the nasty storm brewing.<br />
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After talking with the doctor when she did call me and explaining reasonably and calmly about the S8 recording efficacy data: pressure, leak rate, apnea / hypopnea index for the doctor (I didn't tell her that I also wanted that info) and EPR (she said EPR is of NO consequence what-so-ever) and Ramp - which is only optional in the C-Series, she agreed to permit me to have the S8 AutoSet II. But then she started yelling at me about how I should be using CPAP - even though I don't yet have the equipment and she knows that I have just recently been in the hospital - so I couldn't possibly yet have started. When I mentioned that she knew I couldn't have started because of having gone into the hospital as an emergency, only then did she spit out: Oh, yes, I hope you be alright.<br />
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At the start of the yelling - which came out of nowhere - I had reflexively started to hang up the phone on her but decided to hold on for a minute - and in the end, I am glad I did because I have a consultation at another sleep study center this coming Monday and I am hoping to switch there for further evaluation and treatment. But I think it would be good to have the option of getting the equipment for the next 30 days through this doctor's RX and DME and get going with xPAP in case it will be a little while until I am set up under the guidance of the new sleep center's doctors.<br />
<br />
So thank you so much, once again, for the info you provided here on comparison of equipment and your posting to my earlier inquiry regarding ResMed equipment and for all the on-going support you offer to members of SG.<br />
<br />
Best,<br />
Renee<br />
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<cite>Judy said:</cite><blockquote cite="http://www.sleepguide.com/forum/topics/cpap-whistle#2549090Comment20652"><div>Go to cpap.com. Go to CPAP Machines. Go to Auto Adjusting CPAPs. Notice that that page will allow you to make comparisons. Click on the box for those you want to compare. Print out the Comparison page.<br/><br/>Do the same for the AutoPAPs. Print out that Comparison page too. That the Comparison Page(s) to your sleep doctor - show him the APAP comparisons first. Soften him up first w/how much trouble you are having w/exhalation, etc. w/your current CPAP and not being able to determine if your Leak rate is too high. Ask him which of these APAPs he would prefer you have and ask if he would write a new script for that specific APAP. Remind him these APAPs are coded the same as a straight bare bone CPAP.<br/><br/>If you can't budge him, then fall back on plan 2. Well, if he isn't interested in helping determine any pressure change needs except "by guess and by gosh" or by more expensive, time consuming in-lab titration studies, would he at least script a fully data capable CPAP so the TWO OF YOU at least have SOME idea of what your problems w/therapy might be. Ask him which of the devices on this comparison printout he prefers and if he would write a specific script for that device.<br/><br/>If he goes w/the APAP, stick w/the APAP as long as you can. If he insists on your remaining on the CPAP you are one, keep bugging him and the local DME supplier w/every little problem you have w/it. The squeaky wheel gets the grease. Be sure to get copies of the full scored data summary report w/condensed graphs and well as his dictated results report. Use them as amunition to point out the mixed apneas, etc.</div>
</blockquote> I think I do have my humidifi…tag:www.sleepguide.com,2009-10-27:2549090:Comment:480212009-10-27T18:19:34.889ZBeeAsleephttps://www.sleepguide.com/profile/BeeSturgis
I think I do have my humidifier setting high, is is so dry in Colorado that I like the extra moisture. I whistle if my nasal pillows aren't sparkley clean as well. thanks. b
I think I do have my humidifier setting high, is is so dry in Colorado that I like the extra moisture. I whistle if my nasal pillows aren't sparkley clean as well. thanks. b I know I'm a bit late to this…tag:www.sleepguide.com,2009-10-27:2549090:Comment:479922009-10-27T15:35:46.856ZBrian Katzunghttps://www.sleepguide.com/profile/BrianKatzung
I know I'm a bit late to this thread, but there's another possible cause of whistling, which seems to be somewhat underrepresented on this board, and that's whistling from condensation. (I had it night before last.)<br />
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According to a search for "mask whistle" at <a href="http://tinyurl.com/scan-cpap-bbs">http://tinyurl.com/scan-cpap-bbs</a>, some (long-term, not necessarily same-night) options seem to be turning down the humidifier settings, getting a hose cover or a heated hose, and using…
I know I'm a bit late to this thread, but there's another possible cause of whistling, which seems to be somewhat underrepresented on this board, and that's whistling from condensation. (I had it night before last.)<br />
<br />
According to a search for "mask whistle" at <a href="http://tinyurl.com/scan-cpap-bbs">http://tinyurl.com/scan-cpap-bbs</a>, some (long-term, not necessarily same-night) options seem to be turning down the humidifier settings, getting a hose cover or a heated hose, and using toothpicks to make sure the exhalation holes are all clear. Judy, YOU ARE AWESOME!
Judy…tag:www.sleepguide.com,2009-04-24:2549090:Comment:206542009-04-24T15:47:24.410ZBeeAsleephttps://www.sleepguide.com/profile/BeeSturgis
Judy, YOU ARE AWESOME!<br />
<br />
<cite>Judy said:</cite><blockquote cite="http://www.sleepguide.com/forum/topics/cpap-whistle?page=1&commentId=2549090%3AComment%3A20652&x=1#2549090Comment20652"><div>Go to cpap.com. Go to CPAP Machines. Go to Auto Adjusting CPAPs. Notice that that page will allow you to make comparisons. Click on the box for those you want to compare. Print out the Comparison page.<br></br> <br></br> Do the same for the AutoPAPs. Print out that Comparison page too. That the Comparison…</div>
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Judy, YOU ARE AWESOME!<br />
<br />
<cite>Judy said:</cite><blockquote cite="http://www.sleepguide.com/forum/topics/cpap-whistle?page=1&commentId=2549090%3AComment%3A20652&x=1#2549090Comment20652"><div>Go to cpap.com. Go to CPAP Machines. Go to Auto Adjusting CPAPs. Notice that that page will allow you to make comparisons. Click on the box for those you want to compare. Print out the Comparison page.<br/> <br/>
Do the same for the AutoPAPs. Print out that Comparison page too. That the Comparison Page(s) to your sleep doctor - show him the APAP comparisons first. Soften him up first w/how much trouble you are having w/exhalation, etc. w/your current CPAP and not being able to determine if your Leak rate is too high. Ask him which of these APAPs he would prefer you have and ask if he would write a new script for that specific APAP. Remind him these APAPs are coded the same as a straight bare bone CPAP.<br/>
<br/>
If you can't budge him, then fall back on plan 2. Well, if he isn't interested in helping determine any pressure change needs except "by guess and by gosh" or by more expensive, time consuming in-lab titration studies, would he at least script a fully data capable CPAP so the TWO OF YOU at least have SOME idea of what your problems w/therapy might be. Ask him which of the devices on this comparison printout he prefers and if he would write a specific script for that device.<br/>
<br/>
If he goes w/the APAP, stick w/the APAP as long as you can. If he insists on your remaining on the CPAP you are one, keep bugging him and the local DME supplier w/every little problem you have w/it. The squeaky wheel gets the grease. Be sure to get copies of the full scored data summary report w/condensed graphs and well as his dictated results report. Use them as amunition to point out the mixed apneas, etc.</div>
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