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Fred posted a discussion

CPAP - cure worse than the disease

It's ironic that before I was diagnosed with sleep apnea in 2000, I had no problem sleeping 8-9 hours a night. If I did wake up during the night, I had no problem falling right back to sleep, and I wasn't tired during the day.From the first night I brought home the CPAP I haven't had one decent night's sleep. Not one. I don't have any problem falling asleep, but I can't stay asleep. At first I was waking up after 4-5 hours and couldn't get back to sleep for a couple of hours. Now it's more like…See More
Apr 13
Fred updated their profile
Apr 13
ZolliStar posted a discussion

New mouth device on the market

I've been hearing advertising for this product over the past few days.  It's sold as something to help snoring, but as I look at the information it seems to me that it would work just as well as my mandibular advancement device (MAD).In other words, this could help some of us with sleep apnea.Read about it here.Anybody have any thoughts about this?  See More
Mar 31
99 replied to Mary Z's discussion AHI finally under five.
"Hi Richard I mainly use an empty humidifier as it reduces noise"
Feb 16
richard graham left a comment for richard graham
"When I can afford it I'd like to get New machine with heated tube"
Feb 10
richard graham replied to Mary Z's discussion AHI finally under five.
"I would like to see this forum active again as well. I will be more aware of what's going on"
Feb 10
ZolliStar posted a discussion

If you have trouble falling asleep....

I thought that when I got my sleep apnea diagnosis, that -- at last! -- all my sleep problems had come to an end.Ha!I have trouble falling asleep. Indeed, I rarely feel sleepy at night although I do feel tired. I even cut back on computer at night, etc., etc. (and installed f.lux on my computer) but I still had trouble. Now I'm doing something different: wearing special glasses (Uvex S1933X Skyper Safety Eyewear glasses). They block out the blue -- and they're making a difference! First I tried…See More
Feb 1
99 replied to 99's discussion colloidal silver
"i have purchased some silver the make my own colloidal silver"
Dec 21, 2014
99 replied to 99's discussion colloidal silver
"just add to the distilled water it is antimicrobial eg cleans your machine and is beneficial for keeping you healthy  from bugs germs viruses you get the picture and when you need to clean the humidifier out, put water on your plants the silver…"
Dec 21, 2014
Mary Z left a comment for richard graham
"If the heated tube works with your machine I would try that.  They also make covers for your tubing which may help some.  I think the heated tube may be your answer.  Keep us posted."
Dec 21, 2014
Mary Z left a comment for richard graham
"Richard, some folks just use the humidifier in a Passover mode.  They just don't turn it on, but let the air pick up moisture without heat."
Dec 21, 2014
Mary Z replied to 99's discussion colloidal silver
"99, where have you been?  Do you add the colloidal silver to your humidifier?"
Dec 21, 2014
Mary Z replied to Andy's discussion Resmed S8 AutoSet II - No Longer Collecting Data??
"I Andy, I realize I'm months behind your post.  I have no idea why your S8 would stoop collecting data.  I'm glad to hear  you're having such improvement with your apnea.  I have made great strides since I changed…"
Dec 21, 2014
Mary Z replied to Andy's discussion Resmed S10 AirSense - Anyone have one? Any feedback?
"Andy, just found your post.  I don't know anything about this new machine.  How are you liking your new ResMed?"
Dec 21, 2014
Mary Z left a comment for Kay Day
"Kay, I haven't been around myself and miss the old, active forum."
Dec 21, 2014
Mary Z left a comment for richard graham
"Hi Richard,  I don't bother with a humidifier.  Someone on the forum suggested not using it and I'm a lot less congested without it.  A good AHI is under 5.  I use the Wisp and have been since it came out.  I think…"
Dec 21, 2014
hifay replied to Mary Z's discussion Sleep apnea increases risk of osteoporosis
"Always something. Thanks for the information."
Dec 21, 2014
99 posted a discussion

colloidal silver

a humidifier can be used with colloidal silverthis can keep the humidifier clean for day maybe weeks or longer without the need to clean the humidifiersilver colloidal is antimicrobial and you could just top up your humidifier without cleaning and at the same time treat your bodyor you just put silver on it own into the humidifierSee More
Dec 20, 2014
richard graham posted a status
"I feel like the humidifier is making me feel yucky and I'm waking up hacking and having to clear my throat a lot for a while."
Nov 3, 2014
richard graham posted a discussion

what's a good AHI?

I've been using and auto and it says my AHI HAS been between 4 and 6 and wondering what's a good range.
Nov 2, 2014
My eye doctor told me I have high blood pressure because the vessels in my eyes keep bursting. I look like I have been in a bar fight, and lost! I do not have daytime high blood pressure 119/70. Do you think I could have high blood pressure at night from my Mixed Sleep Apnea? Has anyone else had this happen?

I have recently been diagnosed with asthma and GERD as well. Are all of these conditions tied together somehow?

I have only been using the CPAP with the nasal pillows for about 1 1/2 weeks. I was (am) so embarrassed to wear the mask in front of my husband. It has been very emotional and upsetting so far. I ama glad I found a forum that helps people like us. It feels very isolating using the CPAP.

Thanks for your help.

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It sounds like you are on the right track. If you have mixed apnea you need to work closely with your doctor to get the maximum benefit from therapy. I am lucky as mine is just plain old fashioned obstructive sleep apnea.
BeeAlseep wrote, "My eye doctor told me I have high blood pressure because the vessels in my eyes keep bursting. I look like I have been in a bar fight, and lost! I do not have daytime high blood pressure 119/70."

I think you are having an affair! True story from about 15 years ago, we saw an article in the newspaper that said broken blood vessels often occur when having sex, especially with a new partner. The guys in the office laughed about the article.

I swear this is the truth. Two weeks after we had seen the article, our IT Manager took a three-day weekend to go deer hunting. When he returned to the office he had a large broken vessel in one eye. Boy did we give it to him about his dear hunting weekend! :)

Here is what WikiAnswers has to say, "this can be caused by extremely high blood pressure (especially when BP is elevated rapidly). For instance, it could be anything from crying too hard, forceful vomiting or dry heaving. In more frequent cases, medical issues such as hypertension or diabetes can cause the blood vessels in the eyes to break. Diabetic retinopathy is one of the more serious conditions and if this is even a possibliity you should see a doctor."

I have also heard weightlifters say they get them lifting, especially if they hold their breath (a no-no) when doing a heavy lift.

I used to get them and it could have been my undiagnosed sleep apnea. But I also used to lead a wilder life. :)

Good luck,
WOW, I sure wish I had YOUR life! But, alas, I don't. smiles. I had a older male doctor tell me the same thing about having sex about 20 years ago. I was much younger then, and I remember coming close to smacking him upside the head. I wasn't swinging upside down from the curtains! Smiles.

Well, I have had every eye scan possible and the only thing they can tell me is blood pressure. I have been tested for diabetes and my sugar and blood pressure are normal. I personally think it was the undiagnosed sleep apnea. I wake up tight and tense with muscle pain and teeth grinding and headaches and crazy eyeballs. Unless I am SLEEP walking at night and having a good ole' time!

Banyon said:
BeeAlseep wrote, "My eye doctor told me I have high blood pressure because the vessels in my eyes keep bursting. I look like I have been in a bar fight, and lost! I do not have daytime high blood pressure 119/70."

I think you are having an affair! True story from about 15 years ago, we saw an article in the newspaper that said broken blood vessels often occur when having sex, especially with a new partner. The guys in the office laughed about the article.

I swear this is the truth. Two weeks after we had seen the article, our IT Manager took a three-day weekend to go deer hunting. When he returned to the office he had a large broken vessel in one eye. Boy did we give it to him about his dear hunting weekend! :)

Here is what WikiAnswers has to say, "this can be caused by extremely high blood pressure (especially when BP is elevated rapidly). For instance, it could be anything from crying too hard, forceful vomiting or dry heaving. In more frequent cases, medical issues such as hypertension or diabetes can cause the blood vessels in the eyes to break. Diabetic retinopathy is one of the more serious conditions and if this is even a possibliity you should see a doctor."

I have also heard weightlifters say they get them lifting, especially if they hold their breath (a no-no) when doing a heavy lift.

I used to get them and it could have been my undiagnosed sleep apnea. But I also used to lead a wilder life. :)

Good luck,
Thanks so much for your help. I am printing out your reply and making sure I have it with me when I talk to the RT this week. I go in for a follow up appt at Natl Jewish in Denver in a week as well. I will make sure I get the right machine. I would have never known how to take care of myself without this forum. I feel so blessed to have found this. By the way, I found your site on an ad in Facebook.
Judy said:
GERD and Reflux ARE related to and CAN CAUSE asthma over a prolonged period of time.

Whether you are put on a Bi-PAP or not I would return that Escape and INSIST on at the very least the Resmed S8 Elite or S8 Elite II, both of which have EPR and are fully data capable.

If you have Mixed Apnea you may well end up on a VPAP or BiPAP ASV. Resmed's ASV was specifically developed for Central Apnea/Cheyn-Stokes Syndrome. I'd ask what brand and model they intended to provide, tell them to wait a minute, run home and check that model out online - and similar models - then go back and tell them whether I would accept it - or wouldn't accept it because it wasn't fully data capable. Just because a device has a data card does NOT mean it is fully data capable.

Also, just a prolonged coughing spree or hard cough can rupture blood vessels in the eye. I don' t know if that holds true for sneezing or not.
Also I cough a LOT from my asthma...that could have broken my blood vessels in my eyes as well. Now I know to use my rescue inhaler when I start coughing like that.

BeeAsleep said:
Thanks so much for your help. I am printing out your reply and making sure I have it with me when I talk to the RT this week. I go in for a follow up appt at Natl Jewish in Denver in a week as well. I will make sure I get the right machine. I would have never known how to take care of myself without this forum. I feel so blessed to have found this. By the way, I found your site on an ad in Facebook.
Judy said:
GERD and Reflux ARE related to and CAN CAUSE asthma over a prolonged period of time.

Whether you are put on a Bi-PAP or not I would return that Escape and INSIST on at the very least the Resmed S8 Elite or S8 Elite II, both of which have EPR and are fully data capable.

If you have Mixed Apnea you may well end up on a VPAP or BiPAP ASV. Resmed's ASV was specifically developed for Central Apnea/Cheyn-Stokes Syndrome. I'd ask what brand and model they intended to provide, tell them to wait a minute, run home and check that model out online - and similar models - then go back and tell them whether I would accept it - or wouldn't accept it because it wasn't fully data capable. Just because a device has a data card does NOT mean it is fully data capable.

Also, just a prolonged coughing spree or hard cough can rupture blood vessels in the eye. I don' t know if that holds true for sneezing or not.
Judy, why is it important to have a machine that is fully data capable and what exactly does that mean?

Judy said:
GERD and Reflux ARE related to and CAN CAUSE asthma over a prolonged period of time.

Whether you are put on a Bi-PAP or not I would return that Escape and INSIST on at the very least the Resmed S8 Elite or S8 Elite II, both of which have EPR and are fully data capable.

If you have Mixed Apnea you may well end up on a VPAP or BiPAP ASV. Resmed's ASV was specifically developed for Central Apnea/Cheyn-Stokes Syndrome. I'd ask what brand and model they intended to provide, tell them to wait a minute, run home and check that model out online - and similar models - then go back and tell them whether I would accept it - or wouldn't accept it because it wasn't fully data capable. Just because a device has a data card does NOT mean it is fully data capable.

Also, just a prolonged coughing spree or hard cough can rupture blood vessels in the eye. I don' t know if that holds true for sneezing or not.
Fully data capable means that the xPAP is capable of reporting your Pressure, Leak, AHI and AI as well as the number of hours and nights used. The number of hours and nights used are the Compliance Data which is of absolutely no value to you but only to the local DME supplier as proof for your insurance that you are using the xPAP they are paying for and ensuring that the DME supplier gets their insurance money.

That Pressure, Leak, AHI and AI data can given indications of how well you are responding to therapy - and more importantly - can provide important clues as to why you are NOT responding as well as expected to xPAP therapy. It can also be encouraging for us to see some actual data to verify that we really are feeling better and its not just our imagination - or vice versa, it is not just our imagination that we are NOT getting the benefit of therapy we should be getting.

Your Humidaire 3i integrated humidifier will be compatable w/the Elite so it is only the Escape you would want to return to exchange for the Elite.

The nice thing about the Elite (other than the excellent therapy it provides) is the easy access to and the amount of data available via the LCD screen every morning before noon. These devices have an internal, 24 hour, noon to noon, clock so we have to access the nightly data before noon as at noon the night's data is rolled over into the total averages. And once we've used it long enough we can also access the weekly, monthly, 6 month and yearly data averages via the LCD screen as well.

My personal opinion is that they shouldn't even build or provide anything less than a fully data capable xPAP.
Thanks so much. I feel better prepared to take charge of my own health by asking intelligent informed questions of my RT and Physician. :>D

Judy said:
Fully data capable means that the xPAP is capable of reporting your Pressure, Leak, AHI and AI as well as the number of hours and nights used. The number of hours and nights used are the Compliance Data which is of absolutely no value to you but only to the local DME supplier as proof for your insurance that you are using the xPAP they are paying for and ensuring that the DME supplier gets their insurance money.

That Pressure, Leak, AHI and AI data can given indications of how well you are responding to therapy - and more importantly - can provide important clues as to why you are NOT responding as well as expected to xPAP therapy. It can also be encouraging for us to see some actual data to verify that we really are feeling better and its not just our imagination - or vice versa, it is not just our imagination that we are NOT getting the benefit of therapy we should be getting.

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