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Latest Activity

99 replied to Mary Z's discussion AHI finally under five.
"Hi Richard I mainly use an empty humidifier as it reduces noise"
Feb 16
richard graham left a comment for richard graham
"When I can afford it I'd like to get New machine with heated tube"
Feb 10
richard graham replied to Mary Z's discussion AHI finally under five.
"I would like to see this forum active again as well. I will be more aware of what's going on"
Feb 10
ZolliStar posted a discussion

If you have trouble falling asleep....

I thought that when I got my sleep apnea diagnosis, that -- at last! -- all my sleep problems had come to an end.Ha!I have trouble falling asleep. Indeed, I rarely feel sleepy at night although I do feel tired. I even cut back on computer at night, etc., etc. (and installed f.lux on my computer) but I still had trouble. Now I'm doing something different: wearing special glasses (Uvex S1933X Skyper Safety Eyewear glasses). They block out the blue -- and they're making a difference! First I tried…See More
Feb 1
99 replied to 99's discussion colloidal silver
"i have purchased some silver the make my own colloidal silver"
Dec 21, 2014
99 replied to 99's discussion colloidal silver
"just add to the distilled water it is antimicrobial eg cleans your machine and is beneficial for keeping you healthy  from bugs germs viruses you get the picture and when you need to clean the humidifier out, put water on your plants the silver…"
Dec 21, 2014
Mary Z left a comment for richard graham
"If the heated tube works with your machine I would try that.  They also make covers for your tubing which may help some.  I think the heated tube may be your answer.  Keep us posted."
Dec 21, 2014
Mary Z left a comment for richard graham
"Richard, some folks just use the humidifier in a Passover mode.  They just don't turn it on, but let the air pick up moisture without heat."
Dec 21, 2014
Mary Z replied to 99's discussion colloidal silver
"99, where have you been?  Do you add the colloidal silver to your humidifier?"
Dec 21, 2014
Mary Z replied to Andy's discussion Resmed S8 AutoSet II - No Longer Collecting Data??
"I Andy, I realize I'm months behind your post.  I have no idea why your S8 would stoop collecting data.  I'm glad to hear  you're having such improvement with your apnea.  I have made great strides since I changed…"
Dec 21, 2014
Mary Z replied to Andy's discussion Resmed S10 AirSense - Anyone have one? Any feedback?
"Andy, just found your post.  I don't know anything about this new machine.  How are you liking your new ResMed?"
Dec 21, 2014
Mary Z left a comment for Kay Day
"Kay, I haven't been around myself and miss the old, active forum."
Dec 21, 2014
Mary Z left a comment for richard graham
"Hi Richard,  I don't bother with a humidifier.  Someone on the forum suggested not using it and I'm a lot less congested without it.  A good AHI is under 5.  I use the Wisp and have been since it came out.  I think…"
Dec 21, 2014
hifay replied to Mary Z's discussion Sleep apnea increases risk of osteoporosis
"Always something. Thanks for the information."
Dec 21, 2014
99 posted a discussion

colloidal silver

a humidifier can be used with colloidal silverthis can keep the humidifier clean for day maybe weeks or longer without the need to clean the humidifiersilver colloidal is antimicrobial and you could just top up your humidifier without cleaning and at the same time treat your bodyor you just put silver on it own into the humidifierSee More
Dec 20, 2014
richard graham posted a status
"I feel like the humidifier is making me feel yucky and I'm waking up hacking and having to clear my throat a lot for a while."
Nov 3, 2014
richard graham posted a discussion

what's a good AHI?

I've been using and auto and it says my AHI HAS been between 4 and 6 and wondering what's a good range.
Nov 2, 2014
Andy posted a discussion

Resmed S10 AirSense - Anyone have one? Any feedback?

Hi All,I've just ordered a new Resmed S10 AirSense, and I was wondering if anyone here has used one?Any information or input would be appreciated!See More
Sep 29, 2014
Andy replied to Andy's discussion Resmed S8 AutoSet II - No Longer Collecting Data??
"Hi All, Well, I went to the sleep doc today, and he ordered a new S10 for me! I still don't know why my S8 is not tracking data anymore. Anyone have any ideas?"
Sep 29, 2014
Oscar Lemus updated their profile
Sep 25, 2014

Just heard from a sleep tech that her sleep center, located within a  highly prestigious hospital in one of America's largest and most affluent metropolitan centers, fills patients humidifiers with tap water on CPAP titrations.  furthermore, a 7 year-old child contracted Legionnaires Disease and died from being titrated with a CPAP humidifier filled with tap water.

Make sure you insist on distilled or reverse osmosis/ purified bottled water for your CPAP titrations in the sleep center.  The life you save may be your own.

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Sherry, do you know why peroxide is a better choice than vinegar? Not saying it's the wrong thing to do but I had never heard of using peroxide for that purpose before. Interesting.

Let me put my $0.02 in. Here's a link to a chart for kitchen sanitizing: http://www.ext.colostate.edu/safefood/home/sanitize.pdf

Hopefully this will be able to put an end to all of the comparisons of the different sanitizers.

Gordon H

MZH said:

Sherry, do you know why peroxide is a better choice than vinegar? Not saying it's the wrong thing to do but I had never heard of using peroxide for that purpose before. Interesting.

I agree with you about not using boiled water and using distilled water. I just have a minor correction. Chlorine is removed when you boil water as free chlorine is a gas. I think you meant chloride compounds. We have a water softener, and if you boil the water you will get salt left in the pan (sodium chloride). We also use an activated charcoal filter to remove any free gases. Since the plumbing is copper, there shouldn't be any other metals.

If you live in a place where you have city water, most people I know use bottled water to avoid the situation of rust, lead, arsenic, and other metals which would be left behind from the water pipes. Again, if bromination or chlorination is used by the city, those gases are removed by boiling.

JanSaysHello said:

Boiling tap water may kill any bacteria or viruses but it also concentrates any contaminants such as chlorine, rust, lead etc.  Please don't use boiled water. Avoid breathing in those concentrated chemicals forced into your lungs all night.  Distilled water is the best water to use.
Jan

I can't stand the humidifier so I don't use it, although I do wake up with a dry mouth every morning. It feels like I'm being water-boarded or trying to breathe through a wet rag when I fill it. I'd rather just brush my teeth and swish a little water in my mouth in the morning than breathe wet air all night long( I feel the same about hot air, yuck!).. to each their own I suppose. When I have used it, I used Tap water, and after what I've seen left in the tank after its gone, I will use distilled in the future if I ever decide to start using it again. As someone stated above cleanliness is the key... I had gotten very lax on cleaning my cpap supplies until I got a quarter sized lesion on my nose from my equipment!

Mike, a hospital staff can't cover up the death of a 7 year old boy.

Mike said:

Paul R -- you assume the staff at the center didn't cover up their mistake well.  i would think just the opposite.  

Paul R said:

Mike, with all due respect, while your message is a good one, that yes, we should all be using distilled water, not tap, in our humidifier, i can't help but think your story is apocryphal.

Something like this would (should?) have been all over that center's local news and there would be no need to keep the name of this center anonymous. A 7 year old boy contracting Legionnaire's disease because the wrong type of water was used in a sleep study? Forget local news, this would have been national!

But like I said, your message is a good one and that one should be very careful about the quality of water one puts into his/her humidifier.

I've done a lot of digging, and suspect this story is an urban legend. My guess is that if Mike tried to track it back, he'd find the tech has no first-hand knowledge of the alleged death.

It's a hallmark of urban legends when they're told, they seem to be only one step removed from the source, but if investigated, the attribution keeps getting pushed back to someone else from whom the teller heard the story--the proverbial "friend of a friend."

While I don't think we need to fear tap water, or our sleep center, the reminder to clean and sanitize equipment is important. Here's a discussion of this issue on another board 4 years ago--including a query to and response from to the CDC:

http://www.apneasupport.org/about18274.html

Sleep center? I'll bet that many people use tap water in their home CPAP units. I know I have done this in the past.  I wonder if you may also be at risk for the brain-eating amoeba, Naegleria fowleri, that has caused two deaths from people using tap water in netti-pots.  The risk may be small, but it is not worth it. Distilled water only!

Wow. Thanks for that bit of intel (i.e., Naeglena fowleri ), Todd. I occasionally use a netti pot.

Todd Last said:

Sleep center? I'll bet that many people use tap water in their home CPAP units. I know I have done this in the past.  I wonder if you may also be at risk for the brain-eating amoeba, Naegleria fowleri, that has caused two deaths from people using tap water in netti-pots.  The risk may be small, but it is not worth it. Distilled water only!

That is exactly what I was thinking!! Just read and you will know what to do!!

Wade Hampton said:

Hello everyone,

It says right on my S9 water tank to use only distilled water.  This is in plain English 

imprinted on the tank.  Can't people read?  Also it is not difficult to make your own

distilled water.  

Thanks  H. Hampton

Mike: I did not know you could contract Legionnaires from tap water? Was it possibly due to mold that grew over time from a humidifier that was not ever cleaned, and plus the Lab used tap water rather than a more acidic water like distilled, or reverse osmosis water?

Hi Paul:

That is not always the case. A big Hospital that has political conections can keep a lot of things out of the News. Like for example a mentally ill man jumped or fell, (no one will ever know for sure) to his death off of a 5th Story Hospital Bldg. He was missing for almost 24 hr's before another patient- saw him behind some shrubbery. She didn't think it was a real person, thought it was one of those Annie Dolls they use in CPR class. But she pointed it out to her Nurse and then Nurse took it from there. Very bizzarre- but true story- and it was kept out of the Media. That was back in the late 90's. True different today with everyone have more modern cell phone's and communication spreads faster. But just about 10 years ago, that was not the case. Also, one of my patient's- his brother contracted Legionaires from his Cpap humidifier. The only black mold in his house- was narrowed down to his Cpap unit. But while very ill, he did recover. So the story has a ring of truth to it - from my perspective. The family of the 7 year old may not have know how the child contracted it, but the hospital may have.
Paul R said:

Mike, a hospital staff can't cover up the death of a 7 year old boy.

Mike said:

Paul R -- you assume the staff at the center didn't cover up their mistake well.  i would think just the opposite.  

Paul R said:

Mike, with all due respect, while your message is a good one, that yes, we should all be using distilled water, not tap, in our humidifier, i can't help but think your story is apocryphal.

Something like this would (should?) have been all over that center's local news and there would be no need to keep the name of this center anonymous. A 7 year old boy contracting Legionnaire's disease because the wrong type of water was used in a sleep study? Forget local news, this would have been national!

But like I said, your message is a good one and that one should be very careful about the quality of water one puts into his/her humidifier.

i also hear that a bigger hospital is more easily able to cover up this type of thing.

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