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CPAP Supplies

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richard graham posted a status
"For the first time in a while I got a whole night sleep with my machine but woke up beat and left side of my head feels weird, not sure if"
yesterday
Brendan Duffy posted a status
"How did you slhttp://blog.aastweb.org/winners-and-losers-food-for-thought-sleep-and-athletic-success?utm_campaign=subscribers&utm_source=hs_"
Jul 9
Pat Kniel updated their profile
Jul 7
ZolliStar replied to Fred's discussion CPAP - cure worse than the disease
"I'm wondering: what prompted you to consider whether you have sleep apnea in the first place? Also, waking throughout the night isn't uncommon especially as we (*sigh*) age.  I seem to every 90 minutes or so. This pattern probably…"
Jun 27
ZolliStar replied to ZolliStar's discussion New mouth device on the market
"You can try this website:  http://zyppah.com/ I have a MAD (mandibular advancement device). Dr. Steven Park evaluated my mouth and throat (not everyone can use a MAD, it turns out) and pronounced me a candidate for it. The truth?  I…"
Jun 27
Mary Z replied to ZolliStar's discussion New mouth device on the market
"The link didn't work so me so I couldn't see the product.  I do have experience with a supposedly reliable boil and bite device.  I should know by now I have a small mouth and nothing regular size fits.  I don't think…"
Jun 27
richard graham replied to ZolliStar's discussion New mouth device on the market
"If I thought something could work other than this lousy cpap that would be awesome"
May 22
richard graham posted a status
"I moved and have been sick a lot and can't use cpap because of cough and I'm depressed a lot"
Apr 26
Fred posted a discussion

CPAP - cure worse than the disease

It's ironic that before I was diagnosed with sleep apnea in 2000, I had no problem sleeping 8-9 hours a night. If I did wake up during the night, I had no problem falling right back to sleep, and I wasn't tired during the day.From the first night I brought home the CPAP I haven't had one decent night's sleep. Not one. I don't have any problem falling asleep, but I can't stay asleep. At first I was waking up after 4-5 hours and couldn't get back to sleep for a couple of hours. Now it's more like…See More
Apr 13
Fred updated their profile
Apr 13
ZolliStar posted a discussion

New mouth device on the market

I've been hearing advertising for this product over the past few days.  It's sold as something to help snoring, but as I look at the information it seems to me that it would work just as well as my mandibular advancement device (MAD).In other words, this could help some of us with sleep apnea.Read about it here.Anybody have any thoughts about this?  See More
Mar 31
99 replied to Mary Z's discussion AHI finally under five.
"Hi Richard I mainly use an empty humidifier as it reduces noise"
Feb 16
richard graham left a comment for richard graham
"When I can afford it I'd like to get New machine with heated tube"
Feb 10
richard graham replied to Mary Z's discussion AHI finally under five.
"I would like to see this forum active again as well. I will be more aware of what's going on"
Feb 10
ZolliStar posted a discussion

If you have trouble falling asleep....

I thought that when I got my sleep apnea diagnosis, that -- at last! -- all my sleep problems had come to an end.Ha!I have trouble falling asleep. Indeed, I rarely feel sleepy at night although I do feel tired. I even cut back on computer at night, etc., etc. (and installed f.lux on my computer) but I still had trouble. Now I'm doing something different: wearing special glasses (Uvex S1933X Skyper Safety Eyewear glasses). They block out the blue -- and they're making a difference! First I tried…See More
Feb 1
99 replied to 99's discussion colloidal silver
"i have purchased some silver the make my own colloidal silver"
Dec 21, 2014
99 replied to 99's discussion colloidal silver
"just add to the distilled water it is antimicrobial eg cleans your machine and is beneficial for keeping you healthy  from bugs germs viruses you get the picture and when you need to clean the humidifier out, put water on your plants the silver…"
Dec 21, 2014
Mary Z left a comment for richard graham
"If the heated tube works with your machine I would try that.  They also make covers for your tubing which may help some.  I think the heated tube may be your answer.  Keep us posted."
Dec 21, 2014
Mary Z left a comment for richard graham
"Richard, some folks just use the humidifier in a Passover mode.  They just don't turn it on, but let the air pick up moisture without heat."
Dec 21, 2014
Mary Z replied to 99's discussion colloidal silver
"99, where have you been?  Do you add the colloidal silver to your humidifier?"
Dec 21, 2014

Just heard from a sleep tech that her sleep center, located within a  highly prestigious hospital in one of America's largest and most affluent metropolitan centers, fills patients humidifiers with tap water on CPAP titrations.  furthermore, a 7 year-old child contracted Legionnaires Disease and died from being titrated with a CPAP humidifier filled with tap water.

Make sure you insist on distilled or reverse osmosis/ purified bottled water for your CPAP titrations in the sleep center.  The life you save may be your own.

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Sherry, do you know why peroxide is a better choice than vinegar? Not saying it's the wrong thing to do but I had never heard of using peroxide for that purpose before. Interesting.

Let me put my $0.02 in. Here's a link to a chart for kitchen sanitizing: http://www.ext.colostate.edu/safefood/home/sanitize.pdf

Hopefully this will be able to put an end to all of the comparisons of the different sanitizers.

Gordon H

MZH said:

Sherry, do you know why peroxide is a better choice than vinegar? Not saying it's the wrong thing to do but I had never heard of using peroxide for that purpose before. Interesting.

I agree with you about not using boiled water and using distilled water. I just have a minor correction. Chlorine is removed when you boil water as free chlorine is a gas. I think you meant chloride compounds. We have a water softener, and if you boil the water you will get salt left in the pan (sodium chloride). We also use an activated charcoal filter to remove any free gases. Since the plumbing is copper, there shouldn't be any other metals.

If you live in a place where you have city water, most people I know use bottled water to avoid the situation of rust, lead, arsenic, and other metals which would be left behind from the water pipes. Again, if bromination or chlorination is used by the city, those gases are removed by boiling.

JanSaysHello said:

Boiling tap water may kill any bacteria or viruses but it also concentrates any contaminants such as chlorine, rust, lead etc.  Please don't use boiled water. Avoid breathing in those concentrated chemicals forced into your lungs all night.  Distilled water is the best water to use.
Jan

I can't stand the humidifier so I don't use it, although I do wake up with a dry mouth every morning. It feels like I'm being water-boarded or trying to breathe through a wet rag when I fill it. I'd rather just brush my teeth and swish a little water in my mouth in the morning than breathe wet air all night long( I feel the same about hot air, yuck!).. to each their own I suppose. When I have used it, I used Tap water, and after what I've seen left in the tank after its gone, I will use distilled in the future if I ever decide to start using it again. As someone stated above cleanliness is the key... I had gotten very lax on cleaning my cpap supplies until I got a quarter sized lesion on my nose from my equipment!

Mike, a hospital staff can't cover up the death of a 7 year old boy.

Mike said:

Paul R -- you assume the staff at the center didn't cover up their mistake well.  i would think just the opposite.  

Paul R said:

Mike, with all due respect, while your message is a good one, that yes, we should all be using distilled water, not tap, in our humidifier, i can't help but think your story is apocryphal.

Something like this would (should?) have been all over that center's local news and there would be no need to keep the name of this center anonymous. A 7 year old boy contracting Legionnaire's disease because the wrong type of water was used in a sleep study? Forget local news, this would have been national!

But like I said, your message is a good one and that one should be very careful about the quality of water one puts into his/her humidifier.

I've done a lot of digging, and suspect this story is an urban legend. My guess is that if Mike tried to track it back, he'd find the tech has no first-hand knowledge of the alleged death.

It's a hallmark of urban legends when they're told, they seem to be only one step removed from the source, but if investigated, the attribution keeps getting pushed back to someone else from whom the teller heard the story--the proverbial "friend of a friend."

While I don't think we need to fear tap water, or our sleep center, the reminder to clean and sanitize equipment is important. Here's a discussion of this issue on another board 4 years ago--including a query to and response from to the CDC:

http://www.apneasupport.org/about18274.html

Sleep center? I'll bet that many people use tap water in their home CPAP units. I know I have done this in the past.  I wonder if you may also be at risk for the brain-eating amoeba, Naegleria fowleri, that has caused two deaths from people using tap water in netti-pots.  The risk may be small, but it is not worth it. Distilled water only!

Wow. Thanks for that bit of intel (i.e., Naeglena fowleri ), Todd. I occasionally use a netti pot.

Todd Last said:

Sleep center? I'll bet that many people use tap water in their home CPAP units. I know I have done this in the past.  I wonder if you may also be at risk for the brain-eating amoeba, Naegleria fowleri, that has caused two deaths from people using tap water in netti-pots.  The risk may be small, but it is not worth it. Distilled water only!

That is exactly what I was thinking!! Just read and you will know what to do!!

Wade Hampton said:

Hello everyone,

It says right on my S9 water tank to use only distilled water.  This is in plain English 

imprinted on the tank.  Can't people read?  Also it is not difficult to make your own

distilled water.  

Thanks  H. Hampton

Mike: I did not know you could contract Legionnaires from tap water? Was it possibly due to mold that grew over time from a humidifier that was not ever cleaned, and plus the Lab used tap water rather than a more acidic water like distilled, or reverse osmosis water?

Hi Paul:

That is not always the case. A big Hospital that has political conections can keep a lot of things out of the News. Like for example a mentally ill man jumped or fell, (no one will ever know for sure) to his death off of a 5th Story Hospital Bldg. He was missing for almost 24 hr's before another patient- saw him behind some shrubbery. She didn't think it was a real person, thought it was one of those Annie Dolls they use in CPR class. But she pointed it out to her Nurse and then Nurse took it from there. Very bizzarre- but true story- and it was kept out of the Media. That was back in the late 90's. True different today with everyone have more modern cell phone's and communication spreads faster. But just about 10 years ago, that was not the case. Also, one of my patient's- his brother contracted Legionaires from his Cpap humidifier. The only black mold in his house- was narrowed down to his Cpap unit. But while very ill, he did recover. So the story has a ring of truth to it - from my perspective. The family of the 7 year old may not have know how the child contracted it, but the hospital may have.
Paul R said:

Mike, a hospital staff can't cover up the death of a 7 year old boy.

Mike said:

Paul R -- you assume the staff at the center didn't cover up their mistake well.  i would think just the opposite.  

Paul R said:

Mike, with all due respect, while your message is a good one, that yes, we should all be using distilled water, not tap, in our humidifier, i can't help but think your story is apocryphal.

Something like this would (should?) have been all over that center's local news and there would be no need to keep the name of this center anonymous. A 7 year old boy contracting Legionnaire's disease because the wrong type of water was used in a sleep study? Forget local news, this would have been national!

But like I said, your message is a good one and that one should be very careful about the quality of water one puts into his/her humidifier.

i also hear that a bigger hospital is more easily able to cover up this type of thing.

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