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liz4cps commented on liz4cps's group Prince William Co, VA support group
"BluePoint Medical* holding their next Remedy event on June 4 with Terry Cralle, RN on "Sleep in the Mordern Family".  They will also be checking CPAP machines and providing breakfast. Click on link above for more…"
May 7
Dan Lyons posted a discussion

CPAP & Dry Mouth

In recent months, I have developed extreme dry mouth as a result of the CPAP.  I am a mouth breather when using CPAP.Recently, I saw an advertisement for the symptoms of dry mouth, but as usual, when I need the information to have a discussion with both my primary care  physician and my dentist I haven't seen the ad. Has anyone else seen the ad and can anyone remember the info in the ad?Thanks in advance,DanSee More
Mar 30
richard graham posted a status
"My deductible is double what a machine is online but I can't get the machine set up. Any ideas?"
Mar 10
BeeAsleep posted a status
"Hi all. I am just checking in and saying hi after being gone for a long time. I am doing GREAT! Just got a new machine and mask. Feel like I"
Jan 23
BeeAsleep updated their profile
Jan 23
99 replied to Fred's discussion CPAP - cure worse than the disease
"Do not turn light on as this hinder you from falling asleep or choose red light instead which do not afect your sleep"
Oct 27, 2015
99 left a comment for Joan Williams Rice
"Hi Joan visiting pelham and I have osa"
Oct 27, 2015
99 left a comment for martha crabtree
"Hi maths visiting pelham "
Oct 27, 2015
99 left a comment for Rhonda Harrison
"Hi Rhondda I am visiting pelham and have osa "
Oct 27, 2015
99 posted a discussion

Leaky gut

Do you have a leaky gutHow would you knowA telltale sign for leaky gut is Athletes footI wish to ask do you have or suffer from itThe reason I ask is maybe this is a common denominatorJust text yes or text noAnd if you are the first to text also keep a tallyExample38 yes 0 noYour input would alter the tally39 yes 0 noSo now I will input first1 yes. 0 noSee More
Sep 26, 2015
richard graham posted a status
"For the first time in a while I got a whole night sleep with my machine but woke up beat and left side of my head feels weird, not sure if"
Sep 2, 2015
Brendan Duffy posted a status
"How did you slhttp://blog.aastweb.org/winners-and-losers-food-for-thought-sleep-and-athletic-success?utm_campaign=subscribers&utm_source=hs_"
Jul 9, 2015
Pat Kniel updated their profile
Jul 7, 2015
ZolliStar replied to Fred's discussion CPAP - cure worse than the disease
"I'm wondering: what prompted you to consider whether you have sleep apnea in the first place? Also, waking throughout the night isn't uncommon especially as we (*sigh*) age.  I seem to every 90 minutes or so. This pattern probably…"
Jun 27, 2015
ZolliStar replied to ZolliStar's discussion New mouth device on the market
"You can try this website:  http://zyppah.com/ I have a MAD (mandibular advancement device). Dr. Steven Park evaluated my mouth and throat (not everyone can use a MAD, it turns out) and pronounced me a candidate for it. The truth?  I…"
Jun 27, 2015
Mary Z replied to ZolliStar's discussion New mouth device on the market
"The link didn't work so me so I couldn't see the product.  I do have experience with a supposedly reliable boil and bite device.  I should know by now I have a small mouth and nothing regular size fits.  I don't think…"
Jun 27, 2015
richard graham replied to ZolliStar's discussion New mouth device on the market
"If I thought something could work other than this lousy cpap that would be awesome"
May 22, 2015
richard graham posted a status
"I moved and have been sick a lot and can't use cpap because of cough and I'm depressed a lot"
Apr 26, 2015
Fred posted a discussion

CPAP - cure worse than the disease

It's ironic that before I was diagnosed with sleep apnea in 2000, I had no problem sleeping 8-9 hours a night. If I did wake up during the night, I had no problem falling right back to sleep, and I wasn't tired during the day.From the first night I brought home the CPAP I haven't had one decent night's sleep. Not one. I don't have any problem falling asleep, but I can't stay asleep. At first I was waking up after 4-5 hours and couldn't get back to sleep for a couple of hours. Now it's more like…See More
Apr 13, 2015
Fred updated their profile
Apr 13, 2015

Just heard from a sleep tech that her sleep center, located within a  highly prestigious hospital in one of America's largest and most affluent metropolitan centers, fills patients humidifiers with tap water on CPAP titrations.  furthermore, a 7 year-old child contracted Legionnaires Disease and died from being titrated with a CPAP humidifier filled with tap water.

Make sure you insist on distilled or reverse osmosis/ purified bottled water for your CPAP titrations in the sleep center.  The life you save may be your own.

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I know of many, many sleep labs that use only tap water in PAP humidifiers.

scary stuff, my friend.  they should know better.

Rock Conner said:

I know of many, many sleep labs that use only tap water in PAP humidifiers.

OMG!  Thanks for the heads up!  I'll take my own bottled water with me to my next test.  Wow!  How sad - and totally preventable!

the sleep center i had my sleep study done filled the humidifier with tap water, this never crossed my mind this could happen but yes they should know better , i never put tap or bottled water in my humidifier at home, i use distilled water . guess the sleep labs try to save money evey way they can. 

is it a good idea to go to a sleep lab that also has their own DME dept or do all sleep labs have their own  ?  just wondering ,  makes me think about them trying to make money on all the equipment we as sleep apnea patients need to get hopefully a good nights sleep . 

Rock Conner said:

I know of many, many sleep labs that use only tap water in PAP humidifiers.

Yes, during one of my sleep studies the tech used water from the tap.  I was too stupid to comment.  She also wired me up incorrectly  and the sleep center only had one TV remote to share between four patients.  It was owned by my former doctor who was clearly interested in it for the money.  I know better than using tap water and didn't speak up.  Can you imagine what happens with those who do not know any better?  A seven year old died.

i did not know better, was just diagnosed with sleep apnea and did not know anything about this diaseas at all except what little reseach i had done about the symptoms .

i like knowing as much as i can about whatever i am experiencing at the time and that is why i love this website , people like you guys have no motive except really wanting to help others

i appreciate all this info everyone puts on here so we as newbies can learn as much as we can and trust the info that is put on here    

Mary Z said:

Yes, during one of my sleep studies the tech used water from the tap.  I was too stupid to comment.  She also wired me up incorrectly  and the sleep center only had one TV remote to share between four patients.  It was owned by my former doctor who was clearly interested in it for the money.  I know better than using tap water and didn't speak up.  Can you imagine what happens with those who do not know any better?  A seven year old died.

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      When a tech came to my home from my DME to teach me how to use my CPAP, he told me that I could use tap water.

      I'm not sure where I found out that I should use distilled water only, but I did. I called the tech and advised him that one should never use tap water.

      I wonder if that tech still tells people that it's acceptable to use tap water....

     

I never knew you had to use distilled water until I read it here.  As of a week ago, I was using tap water because the tech from my medical product company said I didn't need to use anything else.  I used the tap water for over a month.  Yeech!!

Now that I know better I'm curious to know what is wrong with using regular tap water?
 
Mary Z said:

Yes, during one of my sleep studies the tech used water from the tap.  I was too stupid to comment.  She also wired me up incorrectly  and the sleep center only had one TV remote to share between four patients.  It was owned by my former doctor who was clearly interested in it for the money.  I know better than using tap water and didn't speak up.  Can you imagine what happens with those who do not know any better?  A seven year old died.

There is a lot of controversy over in the UK as to whether to use distilled water or not.  The manufacturers recommend it, but it's hard to get over here.  Quite a number of clinics/hospitals tell people to get deionised water instead (for car batteries etc) but this isn't the same (as I discovered to my horror after using it for a good year).  When I tell people that most people in the US used distilled water, I normally get told that it's because your water isn't as good as here in the UK (their words, not mine!!).

People here tend to use pre-boiled tap water, water straight from the tap or bottled water.

What's the real story?

Water has been treated to reduce "bugs" You Are getting residuals if you use tap .Steam distilled should be"sterile" no bug killer or "rust from your pipes. Good Sleep,Chris

Hello everyone,

It says right on my S9 water tank to use only distilled water.  This is in plain English 

imprinted on the tank.  Can't people read?  Also it is not difficult to make your own

distilled water.  

Thanks  H. Hampton

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