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Lee Dryden posted a discussionSleeping with CPAP blog post
Hi,This post is about sleep apnea and blood sugars. Thanks for reading.http://sleepingwithcpap.blogspot.com/See More
ZolliStar replied to ZolliStar's discussion What's the Right Machine?"Thanks for this, Mary.
Worse comes to worse, I'll buy a used machine from Second Wind. First I'm going to see if I can get my doctor to prescribe one.
Maybe this is the final answer. Meanwhile, I'm surely happy to have…"
Mary Z replied to ZolliStar's discussion What's the Right Machine?"Zollistar, I think the ASV is hands down the best machine. It took me four years to get hooked up. Because of lingering depression and continued day time sleepiness with a high AHI my doctor suggested a night in the lab with an…"
ZolliStar replied to ZolliStar's discussion What's the Right Machine?"May I ask two dumb-dumb questions? What do "Dx" and "CSA" mean?
And here is a not-so-dumb-dumb question (I hope!): From your experience, do people sleep better using an ASV machine?
I look forward to your answer.
"
RockRpsgt replied to ZolliStar's discussion What's the Right Machine?"You will most likely not be able to get insurance approval for an ASV without a Dx of CSA. I think that saying that an ASV breathes with you is false. ASV does however provide a better breath support and algorithm for auto use. The newer ASV units…"
Mary Z replied to ZolliStar's discussion Beating Sleep Maintenance Insomnia"Zollistar, what a good idea! The music is nice and relaxing on some of them."
ZolliStar replied to ZolliStar's discussion What's the Right Machine?"Thanks for this information Lisa. It really helps.
Anyone else?
"
Lisa replied to ZolliStar's discussion What's the Right Machine?"Hi Zollistar, I much prefer using an Apap to a straight Cpap. I changed over a few years ago and found straight away that I had much less of a problem with leaks. Another thing that I have noticed is I used to have ongoing problems with my nose…"
Terry Vella replied to ZolliStar's discussion What's the Right Machine?"He's still going, a bit of a pain sometimes but that's life, thanks for asking."
ZolliStar replied to ZolliStar's discussion What's the Right Machine?"This helps a lot, Terry! Thanks for letting me know.
How is your dog??
"
Terry Vella replied to ZolliStar's discussion What's the Right Machine?"ZolliStar, I went straight to an auto so can't really compare but from what I have heard there are two major benefits, first, the comfort factor of not having the high pressure all night and second, it adjusts to what you require, so if you use…"
Mary Z replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp"Ginny, they are probably not doing anything against the law- though it may seem like fraud to us it may be an accepted practice. I would rather change DME's. Have you talked to the manager. They don't want to lose your…"
Ginny Edmundson replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp"It really burns me up that they are doing things like this. Monday I am going to lok up th eMedicare complaint number and give them an ear full.
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RockRpsgt replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp"Companies like this will have to pay in the end. Medicare is taking no prisoners in their effort to reform medicare fraud."
RockRpsgt replied to Mary Z's discussion Symptoms"I had zero symptoms. I was testing equipment one night and fell asleep hooked up. When I woke up my doc said I had an AHI of 10 with 30 second events. I have been on PAP ever since."
Ginny Edmundson replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp"I just use a large rubber band and safety pin to attach i tho the sheet. It doesn't exactly kink, but rather seems to have almost bends that don't quite ever go away. I have one that doesn't but all the others seem to.…"
Mary Z replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp"My light weight tubing does not have a tendency to kink. It just hangs down from the stand and comes back up to the bed. I tried a hose hanger, but bought the cheaper travel model and it just wasn't up to the task."
Ginny Edmundson replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp"I was really surprised when the congestion improved without the humidification. Yes, I use the lighter weight tubing too. Do you have trouble getting the bends and kinks out of them???? I have one favorite that is broken in and I hate…"
Be Careful at Your Sleep Center
Just heard from a sleep tech that her sleep center, located within a highly prestigious hospital in one of America's largest and most affluent metropolitan centers, fills patients humidifiers with tap water on CPAP titrations. furthermore, a 7 year-old child contracted Legionnaires Disease and died from being titrated with a CPAP humidifier filled with tap water.
Make sure you insist on distilled or reverse osmosis/ purified bottled water for your CPAP titrations in the sleep center. The life you save may be your own.
Tags: cpap, legionnaires, titration
Views: 2137
Replies to This Discussion
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Permalink Reply by Rock Conner on -
I know of many, many sleep labs that use only tap water in PAP humidifiers.
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Permalink Reply by Mike on -
scary stuff, my friend. they should know better.
Rock Conner said:I know of many, many sleep labs that use only tap water in PAP humidifiers.
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Permalink Reply by Kate on
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OMG! Thanks for the heads up! I'll take my own bottled water with me to my next test. Wow! How sad - and totally preventable!
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Permalink Reply by Ernestine Webster on
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the sleep center i had my sleep study done filled the humidifier with tap water, this never crossed my mind this could happen but yes they should know better , i never put tap or bottled water in my humidifier at home, i use distilled water . guess the sleep labs try to save money evey way they can.
is it a good idea to go to a sleep lab that also has their own DME dept or do all sleep labs have their own ? just wondering , makes me think about them trying to make money on all the equipment we as sleep apnea patients need to get hopefully a good nights sleep .
Rock Conner said:I know of many, many sleep labs that use only tap water in PAP humidifiers.
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Permalink Reply by Mary Z on -
Yes, during one of my sleep studies the tech used water from the tap. I was too stupid to comment. She also wired me up incorrectly and the sleep center only had one TV remote to share between four patients. It was owned by my former doctor who was clearly interested in it for the money. I know better than using tap water and didn't speak up. Can you imagine what happens with those who do not know any better? A seven year old died.
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Permalink Reply by Ernestine Webster on
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i did not know better, was just diagnosed with sleep apnea and did not know anything about this diaseas at all except what little reseach i had done about the symptoms .
i like knowing as much as i can about whatever i am experiencing at the time and that is why i love this website , people like you guys have no motive except really wanting to help others
i appreciate all this info everyone puts on here so we as newbies can learn as much as we can and trust the info that is put on here
Mary Z said:
Yes, during one of my sleep studies the tech used water from the tap. I was too stupid to comment. She also wired me up incorrectly and the sleep center only had one TV remote to share between four patients. It was owned by my former doctor who was clearly interested in it for the money. I know better than using tap water and didn't speak up. Can you imagine what happens with those who do not know any better? A seven year old died.
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Permalink Reply by ZolliStar on -
When a tech came to my home from my DME to teach me how to use my CPAP, he told me that I could use tap water.
I'm not sure where I found out that I should use distilled water only, but I did. I called the tech and advised him that one should never use tap water.
I wonder if that tech still tells people that it's acceptable to use tap water....
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Permalink Reply by Rita Butler on
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I never knew you had to use distilled water until I read it here. As of a week ago, I was using tap water because the tech from my medical product company said I didn't need to use anything else. I used the tap water for over a month. Yeech!!
Now that I know better I'm curious to know what is wrong with using regular tap water?
Mary Z said:Yes, during one of my sleep studies the tech used water from the tap. I was too stupid to comment. She also wired me up incorrectly and the sleep center only had one TV remote to share between four patients. It was owned by my former doctor who was clearly interested in it for the money. I know better than using tap water and didn't speak up. Can you imagine what happens with those who do not know any better? A seven year old died.
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Permalink Reply by Kath Hope www.hope2Sleep.co.uk on -
There is a lot of controversy over in the UK as to whether to use distilled water or not. The manufacturers recommend it, but it's hard to get over here. Quite a number of clinics/hospitals tell people to get deionised water instead (for car batteries etc) but this isn't the same (as I discovered to my horror after using it for a good year). When I tell people that most people in the US used distilled water, I normally get told that it's because your water isn't as good as here in the UK (their words, not mine!!).
People here tend to use pre-boiled tap water, water straight from the tap or bottled water.
What's the real story?
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Permalink Reply by Chris H on
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Water has been treated to reduce "bugs" You Are getting residuals if you use tap .Steam distilled should be"sterile" no bug killer or "rust from your pipes. Good Sleep,Chris
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Permalink Reply by Wade Hampton on
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Hello everyone,
It says right on my S9 water tank to use only distilled water. This is in plain English
imprinted on the tank. Can't people read? Also it is not difficult to make your own
distilled water.
Thanks H. Hampton
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