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CPAP Supplies

Latest Activity

ZolliStar posted a discussion
Sunday
liz4cps commented on liz4cps's group Prince William Co, VA support group
"I talked to Kimberlie at the Novant Sleep lab last week (at Prince William Hospital) and she said they would not be holding any meetings this year but are planning to start holding meetings again next year.  I'll let you know when we have…"
Jul 14
richard graham posted a status
"I just have mask called the Wisp. Hope it works. Anybody have experience with it. I have an ultra mirage nasal mask and get leaks at brid"
Jul 9
Andy posted a discussion

Resmed S8 AutoSet II - No Longer Collecting Data??

Hi All,First off, my apologies for not checking in for a long time.I've been using my Resmed S8 AutoSet II for almost 3 years! I feel great, have lost almost 30 lbs, am no longer sleepy during the day, sleep through the night, and have my short-term memory back.Yay!I've told my doctors that I'm the "poster child" for Sleep Apnea and CPAPs! It's been, and continues to be, such an amazing experience that I want everyone to know!Everything has been going well in CPAP-land, but in the last few…See More
Jul 7
hifay replied to richard graham's discussion mouth breathing
"What type of chin straps?"
Jul 6
Ginny Edmundson replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"No real improvement in sleep study.  Just not having to use cervical neck color.  What a bummer. Surgeon wants another sleep study in about a month or so (home one) Not sure if will do or not. "
Jun 22
Mary Z replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"Ginny, how are you doing after the tongue procedure?"
Jun 22
Mary Z posted a discussion

AHI finally under five.

I have been on CPAP since March 2008 and had a good AHI when I started therapy (under 5).Then my AHI started getting worse- for a while it stayed in the 20's, then we got it to the high teens.  Nothing we did would help.  My doctor said it was due to the meds I take.  For a couple of years I just tolerated the high AHI.  I did another sleep study and changed to an ASV machine.  For two years I still had a AHI around 11-13.  Then all of a sudden - a month ago I noticed my AHI was running five or…See More
Jun 22
ZolliStar replied to richard graham's discussion mouth breathing
"FWIW, I've been alternating between my mouth device and my APAP. I haven't used humidity at all when I use the APAP -- and don't miss it, either. "
Jun 14
richard graham replied to richard graham's discussion mouth breathing
"I still use humidity but less of it. It seems to be working OK.."
Jun 14
ZolliStar replied to richard graham's discussion mouth breathing
"I rarely use the humidifier. I think it's less necessary during the summer when there is humidity.   I also switch between my mouth device and the APAP.  I like each for different reasons. Not sure with which I sleep better, though.…"
May 21
Mary Z replied to richard graham's discussion sick again
"I've been doing well.  I think you were going to try the cpap without humidity- did that help at all?  I haven't had a cold for a couple of years."
May 14
Ginny Edmundson replied to richard graham's discussion sick again
"CPAP seems to cause stuffiness in many of us.  ANother reason I hate it so much!Do you rinse your nose with saline once a day…maybe before you go to bed for the night? "
May 5
richard graham replied to richard graham's discussion sick again
"I do wake up stuffed up most days"
May 5
richard graham replied to richard graham's discussion sick again
"I do have non allergic rhinitis. Now I'm thinking that's probably it because I only feel that way for a day or 2. Thank you"
May 4
Ginny Edmundson replied to richard graham's discussion sick again
"I have been lucky.  Not one cold past three years. Could some of your problem be allergies?"
May 4
richard graham posted a discussion

sick again

It seems like I am sick with colds more often when I'm on the CPAP. Anybody experience that.
Apr 30
Ginny Edmundson replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"As of now I no longer have to use a chin strap.  I am anxious about the sleep study.  Wondering if I will be able to sleep WITHOUT the CPAP….even thought I hate it it is a part of every night now and is what I am used to.  "
Apr 20
Clueless in Redwood Shores replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"I had it on the same outpatient basis.  Much pain, no long term gain.  I did not have the annual repetition - that might or might not have made the difference. "
Apr 20
Mary Z replied to richard graham's discussion mouth breathing
"glad to hear it, Richard.  Keep us posted."
Apr 13

It's been 3 months for me trying to find a mask that fits without leaking.  I started out with nasal masks until I discovered I sleep with my mouth open.  Then I tried at least 3-4 full face masks until my swap trial period of 30 days ran out.  I even bought my own FitLife Mask from a discount place and still get leaks when I turn around.  Apparently I am a fitful sleeper.  I called my sleep doc and he has no open appointments until March 20 that was made for me three months ago.  I've tried every suggestion made here without success.

My last two resorts are www.padacheek.com/index.html.

  I just spoke to the woman who has sleep apnea herself and started making the pads because she had the same problem we all seem to have.  I ordered one last week to fit around my FitLife but she told me today that although many of her customers have said it does help with the leak problem, it was made to stop the face marks.  She does make an anti-leak pad that fits ResMed Mirage Quattro, Quattro FX, Ultra Mirage Full Face and Fisher Paykel 431 and 432 and Forma and Phillips Respironics Comfort Fusion and Comfort Gel Full Face Mask. (I cut and pasted the above) I ordered one because the last mask I got from my medical supply is a Quattro FX for Her. Hopefully it will stop the leaks.

I have no interest in this or any other business.  I am just another woman with sleep apnea who is having a hard time getting a mask that fits and allows me to get a good night's sleep.  If in the meantime I can help someone else with the same problems I'm having, that's great.  For other newbies who might be having the same fitting problems I am and discovered to their surprise that there are multiple masks out there but was never told that,  I suggest looking up www.cpaplibrary.com/mask-trials.html.   Mary Z from our group gave me that site address.  You can "borrow" for one week any mask you'd like to try.  Unfortunately the two I requested last week didn't fit me but since he sends a prepaid return postage stamp it was easy to send back. 

That's all the new info I have learned from my own experience.  I hope it helps a newbie like me who feels discouraged and doesn't know what to do next.  My biggest mistake was waiting too long to call my doctor instead of relying on my supply carrier.  I asked for the doctor to call me back today and I sure hope he does.  As of last night I gave up with all the masks and slept without one.  I just can't deal with this problem another night.

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Replies to This Discussion

Hi Rita:

Some people are lucky and find a mask right away. I think I may have found a mask with minimal leaks, but I am in my 5th year of trying. Somewhere on this website is a discussion or a video on how to properly put your mask on and make adjustments which definitely has helped me. I am currently using a ResMed Quattro FX and the Sleep Guide instructions told me to turn the machine on first before adjusting the mask. This seems to have made a big difference. I have also shaved my beard a lot shorter which I know won't help you, but I think the former hint may work.

I am not sure if I would ever order equipment through the mail or online after my experiences. I personally think you need to be fitted by a technician who job is to do this on a daily basis. I would Google to see if there are some medical suppliers in the local area with good reputations and multiple stores. I am very fortunate to have a regional supplier that covers VT and NH as we are a rural area here in the Northeast Kingdom of VT. I have been able to do multiple exchanges during these 4+ years at no cost to me other than my time. The mask suppliers also are supposed to have very good policies about exchanges.

Good luck with your search.

Gordon H.

P. S. I just came back to edit my post. I found the How to Fit a Mask Properly. This was posted 07/09/09 by RockRpsgt. Currently, this is on the top of my discussion lists.

You might want to try a bite guard, which you can get at a drugstore for $20 or so. It repositions your jaw a little and may keep your mouth from opening.

  • Hi Gordon ~ Lord, I hope it doesn't take me 5 years to find a mask.  By that time I'll be 81 years old and probably dead and buried!  ;-)
  • I did see the video by RockRpsgt and followed his instructions but they didn't work for me no matter how many times I tried them.
  • I also have the same mask you do, only it's made for a woman.  It just came out.  I have no clue what the difference is...I think yours has a guard across the forehead and mine doesn't.
  • Since I'm weaning off an antidepressant and feeling the effects now that I'm on a low dosage, I think I'm going to put the masks aside for another week.  I can only deal with one thing at a time.
  • Funny thing just happened...my sleep apnea doc just called and wants me to call his consultant tomorrow morning and make an appointment to come in to see if there is something else we can try.  What that something else is I have no idea.  At least something is being done.  Hope it works...

  •  
    Gordon H said:

Hi Rita:

Some people are lucky and find a mask right away. I think I may have found a mask with minimal leaks, but I am in my 5th year of trying. Somewhere on this website is a discussion or a video on how to properly put your mask on and make adjustments which definitely has helped me. I am currently using a ResMed Quattro FX and the Sleep Guide instructions told me to turn the machine on first before adjusting the mask. This seems to have made a big difference. I have also shaved my beard a lot shorter which I know won't help you, but I think the former hint may work.

I am not sure if I would ever order equipment through the mail or online after my experiences. I personally think you need to be fitted by a technician who job is to do this on a daily basis. I would Google to see if there are some medical suppliers in the local area with good reputations and multiple stores. I am very fortunate to have a regional supplier that covers VT and NH as we are a rural area here in the Northeast Kingdom of VT. I have been able to do multiple exchanges during these 4+ years at no cost to me other than my time. The mask suppliers also are supposed to have very good policies about exchanges.

Good luck with your search.

Gordon H.

P. S. I just came back to edit my post. I found the How to Fit a Mask Properly. This was posted 07/09/09 by RockRpsgt. Currently, this is on the top of my discussion lists.

Thanks for replying, Nunya.  My sleep doc just called and I'm supposed to make an appointment tomorrow to go in to see his consultant.


 
Nunya Bizness said:

You might want to try a bite guard, which you can get at a drugstore for $20 or so. It repositions your jaw a little and may keep your mouth from opening.

Rita, It's good you got an earlier appointment, I know what it's like tapering down on antidepressants, I have cut mine in half since Christmas and get all the side effects each time I go down or up. If you are not using the mask, in the short term can you prop yourself up in a chair and sleep, it may not be comfortable but my help your apnea. When you see the consultant make sure they test the mask lying down, turning etc. Also have the pressure on your highset setting for a while. It sounds like the shape of your face is causing the problems.

Terry, I tried sleeping without the mask but by midnight or so I gave up.  I just couldn't sleep right. I took a good look at my mask and would you believe I found part of the silicone edges around the mask were not in their proper grove.  I wash my mask every week but wipe it out with capap wipes every morning.  Somehow I didn't check my mask somewhere between washing it or wiping it out.  I bet that problem was there for days.  Remember, I'm a newbie at this but learning new things every day.  I don't believe I ever saw any literature that said to check to be sure the edges were in the right groves if there was loud leaking sounds.  I know it says to be sure it's put together right but I never saw it said the silicone part of the mask could come out of the edge of the mask any time you use it.  I guess I'm just dumb or something but I learned my lesson.  I fixed it and had hardly any leaking sounds last night. 

I am waiting for some pads to come that are put around the mask.  I'll let everyone know how it works and if it makes any difference.  Now I have to learn to relax with the whole procedure instead of waiting for something to go wrong.


 
Terry Vella said:

Rita, It's good you got an earlier appointment, I know what it's like tapering down on antidepressants, I have cut mine in half since Christmas and get all the side effects each time I go down or up. If you are not using the mask, in the short term can you prop yourself up in a chair and sleep, it may not be comfortable but my help your apnea. When you see the consultant make sure they test the mask lying down, turning etc. Also have the pressure on your highset setting for a while. It sounds like the shape of your face is causing the problems.
Rita, well done, we all make mistakes at the start. I over filled my humidifier once and got covered in water, I only did it once. I wash all my equipment once a week as well and really have to concentrate on putting every bit back as it was. Keep at it and let us know how you go.

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