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Latest Activity

99 replied to Mary Z's discussion AHI finally under five.
"Hi Richard I mainly use an empty humidifier as it reduces noise"
Feb 16
richard graham left a comment for richard graham
"When I can afford it I'd like to get New machine with heated tube"
Feb 10
richard graham replied to Mary Z's discussion AHI finally under five.
"I would like to see this forum active again as well. I will be more aware of what's going on"
Feb 10
ZolliStar posted a discussion

If you have trouble falling asleep....

I thought that when I got my sleep apnea diagnosis, that -- at last! -- all my sleep problems had come to an end.Ha!I have trouble falling asleep. Indeed, I rarely feel sleepy at night although I do feel tired. I even cut back on computer at night, etc., etc. (and installed f.lux on my computer) but I still had trouble. Now I'm doing something different: wearing special glasses (Uvex S1933X Skyper Safety Eyewear glasses). They block out the blue -- and they're making a difference! First I tried…See More
Feb 1
99 replied to 99's discussion colloidal silver
"i have purchased some silver the make my own colloidal silver"
Dec 21, 2014
99 replied to 99's discussion colloidal silver
"just add to the distilled water it is antimicrobial eg cleans your machine and is beneficial for keeping you healthy  from bugs germs viruses you get the picture and when you need to clean the humidifier out, put water on your plants the silver…"
Dec 21, 2014
Mary Z left a comment for richard graham
"If the heated tube works with your machine I would try that.  They also make covers for your tubing which may help some.  I think the heated tube may be your answer.  Keep us posted."
Dec 21, 2014
Mary Z left a comment for richard graham
"Richard, some folks just use the humidifier in a Passover mode.  They just don't turn it on, but let the air pick up moisture without heat."
Dec 21, 2014
Mary Z replied to 99's discussion colloidal silver
"99, where have you been?  Do you add the colloidal silver to your humidifier?"
Dec 21, 2014
Mary Z replied to Andy's discussion Resmed S8 AutoSet II - No Longer Collecting Data??
"I Andy, I realize I'm months behind your post.  I have no idea why your S8 would stoop collecting data.  I'm glad to hear  you're having such improvement with your apnea.  I have made great strides since I changed…"
Dec 21, 2014
Mary Z replied to Andy's discussion Resmed S10 AirSense - Anyone have one? Any feedback?
"Andy, just found your post.  I don't know anything about this new machine.  How are you liking your new ResMed?"
Dec 21, 2014
Mary Z left a comment for Kay Day
"Kay, I haven't been around myself and miss the old, active forum."
Dec 21, 2014
Mary Z left a comment for richard graham
"Hi Richard,  I don't bother with a humidifier.  Someone on the forum suggested not using it and I'm a lot less congested without it.  A good AHI is under 5.  I use the Wisp and have been since it came out.  I think…"
Dec 21, 2014
hifay replied to Mary Z's discussion Sleep apnea increases risk of osteoporosis
"Always something. Thanks for the information."
Dec 21, 2014
99 posted a discussion

colloidal silver

a humidifier can be used with colloidal silverthis can keep the humidifier clean for day maybe weeks or longer without the need to clean the humidifiersilver colloidal is antimicrobial and you could just top up your humidifier without cleaning and at the same time treat your bodyor you just put silver on it own into the humidifierSee More
Dec 20, 2014
richard graham posted a status
"I feel like the humidifier is making me feel yucky and I'm waking up hacking and having to clear my throat a lot for a while."
Nov 3, 2014
richard graham posted a discussion

what's a good AHI?

I've been using and auto and it says my AHI HAS been between 4 and 6 and wondering what's a good range.
Nov 2, 2014
Andy posted a discussion

Resmed S10 AirSense - Anyone have one? Any feedback?

Hi All,I've just ordered a new Resmed S10 AirSense, and I was wondering if anyone here has used one?Any information or input would be appreciated!See More
Sep 29, 2014
Andy replied to Andy's discussion Resmed S8 AutoSet II - No Longer Collecting Data??
"Hi All, Well, I went to the sleep doc today, and he ordered a new S10 for me! I still don't know why my S8 is not tracking data anymore. Anyone have any ideas?"
Sep 29, 2014
Oscar Lemus updated their profile
Sep 25, 2014

It's been 3 months for me trying to find a mask that fits without leaking.  I started out with nasal masks until I discovered I sleep with my mouth open.  Then I tried at least 3-4 full face masks until my swap trial period of 30 days ran out.  I even bought my own FitLife Mask from a discount place and still get leaks when I turn around.  Apparently I am a fitful sleeper.  I called my sleep doc and he has no open appointments until March 20 that was made for me three months ago.  I've tried every suggestion made here without success.

My last two resorts are www.padacheek.com/index.html.

  I just spoke to the woman who has sleep apnea herself and started making the pads because she had the same problem we all seem to have.  I ordered one last week to fit around my FitLife but she told me today that although many of her customers have said it does help with the leak problem, it was made to stop the face marks.  She does make an anti-leak pad that fits ResMed Mirage Quattro, Quattro FX, Ultra Mirage Full Face and Fisher Paykel 431 and 432 and Forma and Phillips Respironics Comfort Fusion and Comfort Gel Full Face Mask. (I cut and pasted the above) I ordered one because the last mask I got from my medical supply is a Quattro FX for Her. Hopefully it will stop the leaks.

I have no interest in this or any other business.  I am just another woman with sleep apnea who is having a hard time getting a mask that fits and allows me to get a good night's sleep.  If in the meantime I can help someone else with the same problems I'm having, that's great.  For other newbies who might be having the same fitting problems I am and discovered to their surprise that there are multiple masks out there but was never told that,  I suggest looking up www.cpaplibrary.com/mask-trials.html.   Mary Z from our group gave me that site address.  You can "borrow" for one week any mask you'd like to try.  Unfortunately the two I requested last week didn't fit me but since he sends a prepaid return postage stamp it was easy to send back. 

That's all the new info I have learned from my own experience.  I hope it helps a newbie like me who feels discouraged and doesn't know what to do next.  My biggest mistake was waiting too long to call my doctor instead of relying on my supply carrier.  I asked for the doctor to call me back today and I sure hope he does.  As of last night I gave up with all the masks and slept without one.  I just can't deal with this problem another night.

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Hi Rita:

Some people are lucky and find a mask right away. I think I may have found a mask with minimal leaks, but I am in my 5th year of trying. Somewhere on this website is a discussion or a video on how to properly put your mask on and make adjustments which definitely has helped me. I am currently using a ResMed Quattro FX and the Sleep Guide instructions told me to turn the machine on first before adjusting the mask. This seems to have made a big difference. I have also shaved my beard a lot shorter which I know won't help you, but I think the former hint may work.

I am not sure if I would ever order equipment through the mail or online after my experiences. I personally think you need to be fitted by a technician who job is to do this on a daily basis. I would Google to see if there are some medical suppliers in the local area with good reputations and multiple stores. I am very fortunate to have a regional supplier that covers VT and NH as we are a rural area here in the Northeast Kingdom of VT. I have been able to do multiple exchanges during these 4+ years at no cost to me other than my time. The mask suppliers also are supposed to have very good policies about exchanges.

Good luck with your search.

Gordon H.

P. S. I just came back to edit my post. I found the How to Fit a Mask Properly. This was posted 07/09/09 by RockRpsgt. Currently, this is on the top of my discussion lists.

You might want to try a bite guard, which you can get at a drugstore for $20 or so. It repositions your jaw a little and may keep your mouth from opening.

  • Hi Gordon ~ Lord, I hope it doesn't take me 5 years to find a mask.  By that time I'll be 81 years old and probably dead and buried!  ;-)
  • I did see the video by RockRpsgt and followed his instructions but they didn't work for me no matter how many times I tried them.
  • I also have the same mask you do, only it's made for a woman.  It just came out.  I have no clue what the difference is...I think yours has a guard across the forehead and mine doesn't.
  • Since I'm weaning off an antidepressant and feeling the effects now that I'm on a low dosage, I think I'm going to put the masks aside for another week.  I can only deal with one thing at a time.
  • Funny thing just happened...my sleep apnea doc just called and wants me to call his consultant tomorrow morning and make an appointment to come in to see if there is something else we can try.  What that something else is I have no idea.  At least something is being done.  Hope it works...

  •  
    Gordon H said:

Hi Rita:

Some people are lucky and find a mask right away. I think I may have found a mask with minimal leaks, but I am in my 5th year of trying. Somewhere on this website is a discussion or a video on how to properly put your mask on and make adjustments which definitely has helped me. I am currently using a ResMed Quattro FX and the Sleep Guide instructions told me to turn the machine on first before adjusting the mask. This seems to have made a big difference. I have also shaved my beard a lot shorter which I know won't help you, but I think the former hint may work.

I am not sure if I would ever order equipment through the mail or online after my experiences. I personally think you need to be fitted by a technician who job is to do this on a daily basis. I would Google to see if there are some medical suppliers in the local area with good reputations and multiple stores. I am very fortunate to have a regional supplier that covers VT and NH as we are a rural area here in the Northeast Kingdom of VT. I have been able to do multiple exchanges during these 4+ years at no cost to me other than my time. The mask suppliers also are supposed to have very good policies about exchanges.

Good luck with your search.

Gordon H.

P. S. I just came back to edit my post. I found the How to Fit a Mask Properly. This was posted 07/09/09 by RockRpsgt. Currently, this is on the top of my discussion lists.

Thanks for replying, Nunya.  My sleep doc just called and I'm supposed to make an appointment tomorrow to go in to see his consultant.


 
Nunya Bizness said:

You might want to try a bite guard, which you can get at a drugstore for $20 or so. It repositions your jaw a little and may keep your mouth from opening.

Rita, It's good you got an earlier appointment, I know what it's like tapering down on antidepressants, I have cut mine in half since Christmas and get all the side effects each time I go down or up. If you are not using the mask, in the short term can you prop yourself up in a chair and sleep, it may not be comfortable but my help your apnea. When you see the consultant make sure they test the mask lying down, turning etc. Also have the pressure on your highset setting for a while. It sounds like the shape of your face is causing the problems.

Terry, I tried sleeping without the mask but by midnight or so I gave up.  I just couldn't sleep right. I took a good look at my mask and would you believe I found part of the silicone edges around the mask were not in their proper grove.  I wash my mask every week but wipe it out with capap wipes every morning.  Somehow I didn't check my mask somewhere between washing it or wiping it out.  I bet that problem was there for days.  Remember, I'm a newbie at this but learning new things every day.  I don't believe I ever saw any literature that said to check to be sure the edges were in the right groves if there was loud leaking sounds.  I know it says to be sure it's put together right but I never saw it said the silicone part of the mask could come out of the edge of the mask any time you use it.  I guess I'm just dumb or something but I learned my lesson.  I fixed it and had hardly any leaking sounds last night. 

I am waiting for some pads to come that are put around the mask.  I'll let everyone know how it works and if it makes any difference.  Now I have to learn to relax with the whole procedure instead of waiting for something to go wrong.


 
Terry Vella said:

Rita, It's good you got an earlier appointment, I know what it's like tapering down on antidepressants, I have cut mine in half since Christmas and get all the side effects each time I go down or up. If you are not using the mask, in the short term can you prop yourself up in a chair and sleep, it may not be comfortable but my help your apnea. When you see the consultant make sure they test the mask lying down, turning etc. Also have the pressure on your highset setting for a while. It sounds like the shape of your face is causing the problems.
Rita, well done, we all make mistakes at the start. I over filled my humidifier once and got covered in water, I only did it once. I wash all my equipment once a week as well and really have to concentrate on putting every bit back as it was. Keep at it and let us know how you go.

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