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Permalink Reply by Jazz Angel on April 24, 2011 at 6:52pm

Ginny, I use the Swift FX for Her Nasal Pillows.  So far, so good. 

Ginny Edmundson said:

what type of mask do you use?

Jazz Angel said:

I'm 59, and was just diagnosed with OSA in February of 2011.  I'm otherwise healthy, have a thin build, and have never smoked.  Got my machine in March, and wonder how I ever got any sleep in the last 7-10 years without it.  It's great to be out of the fog of fatigue at last.

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Permalink Reply by Pennywisezzz on April 25, 2011 at 5:59am

That first doctor I went to prescribed me Lunesta and at a follow up appointment I told him I had quit taking it because even though it decreased the amount of times I woke up each night, that I still woke up just as tired as before so it wasn't working.  Do you know he stood there and ARGUED with me?  I'm like "It's useless.  Yes, it decreases how often I wake up, but if I am still just as tired in the morning as I am without it, what is the use in taking it?"  I asked again for a sleep study at that appointment and he changed the subject on me and never did order one.  I got fed up and quit going to him because he wouldn't listen.  He kept insisting that fatigue and night awakenings were hallmark depression symptoms and would not even consider that it could be due to sleep apnea.  At one appointment when he disregarded my requests for a sleep study again he even said to me "You are too young for sleep apnea."  I'd love to go back to him and cram my sleep study results down his stupid throat!

Ernestine Webster said:

so glad you did put your foot down, we have to do that, the same thing happened to me. i kept for a year telling my doctor about my sleep problems and she did not act like she heard me. after seeing this was not working i started keeping a sleep diary and the next time i went to see her i showed it to her and told her i needed something done, she saw i did not sleep but 17 hours in 7 nights and when she saw that she said i say you do have a sleep problem. she wrote me a prescripton for generic ambien. i tried taking them and they worked so well for about a month then they got to not working at all so i took it on myself to find a sleep specialist and saw him and he ordered a sleep study and found out i had suginficient obstructive sleep apnea , 38 episodes in one hour plus hypoapneas and increased leg movements. he told me taking those sleepomg pills was the worst thing i could have done.my oxygen dropped to 82 % at it's lowest during the sleep study.  

i doctors do not know enough about sleep disorders nor do they want to admit they do not know or understand sleep disorders. i am just starting on this new afventure myself and am having problems getting to sleep with the mask on but it has only been a week since i got my cpap and put it on every night trying to get used to it

SO GLAD YOU TOOK YOUR HEALTH CARE ON YOURSELF , i lost a brother to this disease and know the seriouness of this illness. i did not realize it was such a misundrstook disease until i started this journey myself . we have to stick together and suppost eachother.  

Pennywisezzz said:

I am a 28 year old woman and was diagnosed a couple months back.  My OSA was severe.  My AHI was 41 and my O2 Sat was going down to as low as 83%  Interestingly, most of my problems are from hypopneas and not full apneas.  I was told my respirations are slow and shallow while I sleep.  I had asked one doctor several times for a sleep study and he never would order it so I switched doctors and asked the new one on 3-4 different appointments for a sleep study but he, like the other, thought my problems were due to depression and the stresses of being a full time working, single mom.  Finally I just put my foot down and said I was tired of being tired and that I respected his thoughts/opinions on what he thought was wrong but that I really believed there was more to it than just stress & depression.  I said I want a sleep study and I want a referral/prescription to have one and I was not leaving his office without one, lol.  I said it jokingly, but I also reminded him that that was part of the reason why I left my other doctor, because he wasn't listening to me.  Thank goodness I insisted!

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Permalink Reply by Ernestine Webster on April 25, 2011 at 6:42am

i have an appointment with the doctor that would not listen to me this coming friday and am taking my sleep study with me and telling her what i think of the way she treated me when i tried talking to her about my sleep disorder. that really bothers me and makes me feel i have no confidence in her ability or even care when it comes down to a very serious situation with my health care. we have to make them aware of things but we also have the final say about our healthcare. i was brought up to respect doctors and other in authority bu we also should be shown respect as well . i think some doctors are uncomfortable with sleep disorders , sleep disorders are so misundrstood and i never knew how much until i started doing research with sleep disorders and trying to find what was wrong with me. every doctor i went to would throw depression out there and had me halfway believing that, after all i had just lost a job i loved and loved the people i worked with but deep down i knew it was not the case.

keep taking charge of your healthcare, we have too, no one else will .

have a great day  
Pennywisezzz said:

That first doctor I went to prescribed me Lunesta and at a follow up appointment I told him I had quit taking it because even though it decreased the amount of times I woke up each night, that I still woke up just as tired as before so it wasn't working.  Do you know he stood there and ARGUED with me?  I'm like "It's useless.  Yes, it decreases how often I wake up, but if I am still just as tired in the morning as I am without it, what is the use in taking it?"  I asked again for a sleep study at that appointment and he changed the subject on me and never did order one.  I got fed up and quit going to him because he wouldn't listen.  He kept insisting that fatigue and night awakenings were hallmark depression symptoms and would not even consider that it could be due to sleep apnea.  At one appointment when he disregarded my requests for a sleep study again he even said to me "You are too young for sleep apnea."  I'd love to go back to him and cram my sleep study results down his stupid throat!

Ernestine Webster said:

so glad you did put your foot down, we have to do that, the same thing happened to me. i kept for a year telling my doctor about my sleep problems and she did not act like she heard me. after seeing this was not working i started keeping a sleep diary and the next time i went to see her i showed it to her and told her i needed something done, she saw i did not sleep but 17 hours in 7 nights and when she saw that she said i say you do have a sleep problem. she wrote me a prescripton for generic ambien. i tried taking them and they worked so well for about a month then they got to not working at all so i took it on myself to find a sleep specialist and saw him and he ordered a sleep study and found out i had suginficient obstructive sleep apnea , 38 episodes in one hour plus hypoapneas and increased leg movements. he told me taking those sleepomg pills was the worst thing i could have done.my oxygen dropped to 82 % at it's lowest during the sleep study.  

i doctors do not know enough about sleep disorders nor do they want to admit they do not know or understand sleep disorders. i am just starting on this new afventure myself and am having problems getting to sleep with the mask on but it has only been a week since i got my cpap and put it on every night trying to get used to it

SO GLAD YOU TOOK YOUR HEALTH CARE ON YOURSELF , i lost a brother to this disease and know the seriouness of this illness. i did not realize it was such a misundrstook disease until i started this journey myself . we have to stick together and suppost eachother.  

Pennywisezzz said:

I am a 28 year old woman and was diagnosed a couple months back.  My OSA was severe.  My AHI was 41 and my O2 Sat was going down to as low as 83%  Interestingly, most of my problems are from hypopneas and not full apneas.  I was told my respirations are slow and shallow while I sleep.  I had asked one doctor several times for a sleep study and he never would order it so I switched doctors and asked the new one on 3-4 different appointments for a sleep study but he, like the other, thought my problems were due to depression and the stresses of being a full time working, single mom.  Finally I just put my foot down and said I was tired of being tired and that I respected his thoughts/opinions on what he thought was wrong but that I really believed there was more to it than just stress & depression.  I said I want a sleep study and I want a referral/prescription to have one and I was not leaving his office without one, lol.  I said it jokingly, but I also reminded him that that was part of the reason why I left my other doctor, because he wasn't listening to me.  Thank goodness I insisted!

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Permalink Reply by Charles E. Mooers on April 25, 2011 at 8:58am

I'm 80.

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Permalink Reply by Charles E. Mooers on April 25, 2011 at 9:07am

I think I'm one of the older ones. On the 26 Jan. I had my first sleep study and I just had my 2nd sleep study on the 23rd of April 2011.
Waiting to receive my script so I can pick up my equip.
I was told my number is A 36. Seems quite high.

PETER WILSON said:

my machine has been broken for two months now with no insurace now, and cant just buy one part to fix it Larry Bruck said:

Hi Everyone

I guess I am in the older end of the group - I'll be 65 in July. I have been treating sleep apnea for over 10 years now.

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Permalink Reply by Jaynie on April 25, 2011 at 10:49am

I am 47 and I think I have sleep apnea.

 

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Permalink Reply by Christine A. Tedeschi on April 26, 2011 at 1:25pm

I am 55 and have sleep apnea

Rock said:

I am also 36. 12 according to my wife.

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Permalink Reply by Pat Kniel on April 26, 2011 at 4:47pm

I"m 78. I have a diagnosis of sleep aspnea and variable respiratory muscle weakness.  I also have a diagnosis of Mitochondrial Cytopathy, a form of Muscular Dystophy.

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