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Latest Activity

Louise replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp
"Ginny, I so agree with your DME frustration. I still haven't gotten billing for my original Wisp. I've since gotten one cushion & am calling this next week about another new one & frame. I too don't like not having extra…"
Saturday
ZolliStar posted discussions
Jun 7
Lee Dryden posted a discussion

Sleeping with CPAP blog post

Hi,Here is a new blog post on the debate over veterans receiving sleep apnea coverage.http://sleepingwithcpap.blogspot.com/See More
May 31
0 Comments
Ginny Edmundson replied to ZolliStar's discussion Wisp nasal mask part for free: Size petite
"I also have the petite and large that someone can have!!!"
May 31
ZolliStar posted a discussion

Wisp nasal mask part for free: Size petite

This isn't the headgear, only the nasal part. I won't be using it and hate to let it go to waste.Anyone want it? If so, contact me privately.See More
May 30
1 Comment
ZolliStar replied to ZolliStar's discussion What's the Right Machine?
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May 28
Mary Z replied to ZolliStar's discussion What's the Right Machine?
"Zollistar, the more I learn about sleep apnea the more I find I do not know.  At least research is ongoing- there's a lot of money in the field. You're right- there are  differences in how each machine senses and treats an…"
May 28
RockRpsgt replied to ZolliStar's discussion Beating Sleep Maintenance Insomnia
"Not a problem, Z. It's important to know and can take a minute to wrap your head around. I know it did for me. Very few sleep disorders fall into a "breathing disorder" catagory.   "
May 28
ZolliStar replied to ZolliStar's discussion What's the Right Machine?
"Dear Mary, Thanks for the clarification that good sleep and apnea are probably two different things. I'm still grateful to Terry Vella for pointing out that sleep apnea is a breathing disorder, not a sleep disorder. That opened my eyes and now…"
May 27
ZolliStar replied to ZolliStar's discussion Beating Sleep Maintenance Insomnia
"Thanks for the clarification, Rock. "
May 27
Mary Z replied to ZolliStar's discussion What's the Right Machine?
"Zollistar, if you haven't seem this video by Dr. Krakow take a look.  It's about ASV. http://www.youtube.com/watch?v=7fMki3KFRgg"
May 27
Mary Z replied to ZolliStar's discussion What's the Right Machine?
"Dx is diagnosis and CSA is central apnea. As to whether people sleep better with an ASV, well if you slept well before  ASV I'd imagine you would continue to sleep well.  I slept well on all modes, but found none that worked for me…"
May 27
RockRpsgt replied to ZolliStar's discussion Beating Sleep Maintenance Insomnia
"Apnea is not a breathing disorder. It actually has very little to do with pulmonary function short of causing O2 desaturations. Sleep apnea is a neuromuscular sleep disorder. Central sleep a[nea is a breathing disorder."
May 27
liz4cps commented on liz4cps's group Prince William Co, VA support group
"I've confirmed that our next meeting is Thursday, June 27 at 7 pm."
May 25
Lee Dryden posted a discussion

Sleeping with CPAP blog post

Hi,This post is about sleep apnea and blood sugars. Thanks for reading.http://sleepingwithcpap.blogspot.com/See More
May 23
0 Comments
ZolliStar replied to ZolliStar's discussion What's the Right Machine?
"Thanks for this, Mary. Worse comes to worse, I'll buy a used machine from Second Wind. First I'm going to see if I can get my doctor to prescribe one. Maybe this is the final answer. Meanwhile, I'm surely happy to have…"
May 22
Mary Z replied to ZolliStar's discussion What's the Right Machine?
"Zollistar, I think  the ASV is hands down the best machine.  It took me four years to get hooked up.  Because of lingering depression and continued day time sleepiness with a high AHI my doctor suggested a night in the lab with an…"
May 22
ZolliStar replied to ZolliStar's discussion What's the Right Machine?
"May I ask two dumb-dumb questions?  What do "Dx" and "CSA" mean? And here is a not-so-dumb-dumb question (I hope!): From your experience, do people sleep better using an ASV machine?  I look forward to your answer. "
May 22
RockRpsgt replied to ZolliStar's discussion What's the Right Machine?
"You will most likely not be able to get insurance approval for an ASV without a Dx of CSA. I think that saying that an ASV breathes with you is false. ASV does however provide a better breath support and algorithm for auto use. The newer ASV units…"
May 22
Mary Z replied to ZolliStar's discussion Beating Sleep Maintenance Insomnia
"Zollistar, what a good idea!  The music is nice and relaxing on some of them."
May 22

75+ events down to 0.9

I am so thrilled with the results from my first check up since I got the Apap!  I have gone from quitting breathing over 75 times per hour to 0.9 or, why not just say 1?  What is the difference?  I did get a different mask because the first one was poofing in my eyes when I would roll over.  I got the ResMed Mirage Micro.  I think it is really gonna help since it has that adjustment for the height of the bridge of my nose.  I swear I'm kin to Barbara Streisand somehow.  Ugh!

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Replies to This Discussion

Permalink Reply by Donna B. on September 7, 2010 at 9:11pm
How do you feel in the morning now ? Are you able to get through an entire day without a nap ??
I am new to this group, newly diagnosed with OSA. I would like to think there IS hope and that a _pap machine will truly help me. My first doctor said the CPAP overnight was a failure so I am going for a second opinion. How many doctors did you see before you got your machine ?

Hooray for you Allison, that is awesome news !! :)
Donna B.
Permalink Reply by Allison Keller on September 7, 2010 at 9:23pm
Well, I used to have a serious problem getting up. I was fallng asleep driving down the interstate on the way to work. Was drinking tons of energy drinks/coffee/cokes just to get through the day only to fall asleep driving back home down the interstate. It's a wonder I didn't get killed or at least into a wreck. I have NO PROBLEMS like this any more. I am even getting some of my memory back. My memory has gone absolutely to crap over the last several years and I had no idea why. I only saw one doctor. If it is possible to flunk a sleep study though I did it. They had to put the mask on me the first night so I didn't have to go back for another one. I really feel like a new person. I REFUSE to sleep without the machine now because I know how bad my OSA was effecting me now. There is hope!!! I PROMISE!!!

Donna B. said:
How do you feel in the morning now ? Are you able to get through an entire day without a nap ??
I am new to this group, newly diagnosed with OSA. I would like to think there IS hope and that a _pap machine will truly help me. My first doctor said the CPAP overnight was a failure so I am going for a second opinion. How many doctors did you see before you got your machine ?

Hooray for you Allison, that is awesome news !! :)
Donna B.
Permalink Reply by Donna B. on September 7, 2010 at 9:54pm
My problem is just the opposite of yours. I can bolt out of bed on the first alarm at 5am and go off to work, BUT, by 11am I am complete toast. I can't concentrate, my mind is fuzzy, I bump into things, can't put a whole sentence together without thinking about it first, the list is endless. I drive home like a zombie and it doesn't help when I hit all the red lights, I close my eyes any chance I get. I nap 2-3 times a day on my days off and some days am only awake for a few hours. Tonight is a rarity, it is 9:45p and I am wide awake. Go figure !
My report states that I did fairly poorly at all pressure settings. I am so afraid to go to sleep but am so exhausted it just happens.

Allison Keller said:
Well, I used to have a serious problem getting up. I was fallng asleep driving down the interstate on the way to work. Was drinking tons of energy drinks/coffee/cokes just to get through the day only to fall asleep driving back home down the interstate. It's a wonder I didn't get killed or at least into a wreck. I have NO PROBLEMS like this any more. I am even getting some of my memory back. My memory has gone absolutely to crap over the last several years and I had no idea why. I only saw one doctor. If it is possible to flunk a sleep study though I did it. They had to put the mask on me the first night so I didn't have to go back for another one. I really feel like a new person. I REFUSE to sleep without the machine now because I know how bad my OSA was effecting me now. There is hope!!! I PROMISE!!!

Donna B. said:
How do you feel in the morning now ? Are you able to get through an entire day without a nap ??
I am new to this group, newly diagnosed with OSA. I would like to think there IS hope and that a _pap machine will truly help me. My first doctor said the CPAP overnight was a failure so I am going for a second opinion. How many doctors did you see before you got your machine ?

Hooray for you Allison, that is awesome news !! :)
Donna B.
Permalink Reply by RockRpsgt on September 7, 2010 at 10:42pm
Congrats Allison!
Permalink Reply by 99 on September 8, 2010 at 4:04am
excellent allison
my events were 21 and are now down to 0.4 and is still feel like rubbish, so i returned to the doc who said i was having silent heart attacks and he give me spray, feel slight improvement waiting on the hospital on that one, i long to have the energy i once enjoyed and took for granted, just to function properly would be nice
Permalink Reply by gordon on September 9, 2010 at 12:04am
Keep working the equipment, Allison, give it 3 months. 2 steps forward, 1 back is ok. Keep us informed.
G.

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