Dr Park, I agree with everything you have said about sleep apnea and the need for patient compliance. However, as said before, not all cpap patients are internet savy as we are! and not all patients are comfortable enough to discuss anything with their doctor - they rely on the doctor telling them the info rather than getting it themselves - these are mostly older adults who, because of being raised in a different generation, where their doctor was the one with all the answers or they felt the doctors were much smarter, or whatever the reason - relied on the doctor to have the expertise. If a doctor wrote them a prescription to "go join a gym or yoga class or tai chi" they would fill it like a prescription for a drug - knowing that the doctor knew best. Today, many of us are more than capable of being our own advocate, however we are not privy to the information
that is most helpful to us. Sleep apnea is a fairly new "disease" so we are all learning as we go along. Thank goodness for websites like this one - where we can all interact and find some solutions.
I would like to know more about MY sleep apnea which as of today is determined to be both obstructive and central but mostly central. This is a SERIOUS diagnosis and I take it seriously. Unfortunately, I have to sleep my day away because my nights are spent waking up and adjusting a mask, readjusting a mask when I turn over, just plain waking up and not knowing why, etc. etc. I have a wonderful machine with all the latest for central sleep apnea, however because my BRAIN is not getting the signal to tell me to BREATHE I feel that this is only a somewhat helpful device, although as far as I know there is nothing else for me.
Does anyone know of a trial or program I could become involved in that would address CENTRAL sleep apnea. I'll go to
Alaska if I have to, but I doubt there is such as program or trial. You see, doctors haven't gotten to the point of having the answers yet. Doctors are just like us, except they have gone through 8 years of highly intensive training to be MDs - they are taught to diagnose and treat. Right? Doctors don't know everything! They are human beings just like us -ONLY WITH TRAINING. Yes, I know I sound frustrated - because I am. I know there is nothing more I can do except follow the doctors advice - do everything they say and hope for the best. Sitting back and doing nothing is not an option. Ron